Organizations Filed Purposes:
To inform and educate the public about hemophilia and other inherited bleeding disorders, and to provide educational and support services for Alaskans living with hemophilia and other inherited bleeding disorders.
Direct Patient Services: health insurance assistance for premiums, medical expenses, clinic appointments, and living assistance for patients with bleeding disorders, post-secondary scholarships for patients with bleeding disorders and nurse staffing for Providence Alaska Medical Center and treatment center support.
Camp Frozen Chosen: Annual summer camp for family and children with genetic bleeding disorders. The goal of this event is to improve the lives of those with bleeding disorders and their families, by providing the experience of camp activities, and providing educational sessions to help children gain skills in self care, teaching them to have control and life skills over their medical condition.
Educational activities: Annual women's retreat, newsletter, annual meeting.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| John Palmatier | Executive Dir. | 40 | $0 |
| Kyme Groller | Secretary | 1 | $0 |
| Wayne Cobb | Treasurer | 1 | $0 |
| Denise Cook | Director | 1 | $0 |
| Marjorie Allard | Vice President | 1 | $0 |
| Matthew Findley | President | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202130829349301043_public.xml