Organizations Filed Purposes:
The ALS Association Golden West Chapter is dedicated to leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with ALS and their families to live fuller lives by providing them with compassionate care and support. The Golden West Chapter supports people living with ALS and their loved ones in 31 counties throughout California and the entire state of Hawaii.
Our mission critical program priorities include care services, research, and advocacy. These programs are provided to people with ALS and their families at no charge. Our accomplishments for fiscal year ending 1/31/20 are as follows:Care Management -Strategically based in and near patients' home communities, the Chapter's Care Managers (CMs) work directly with persons with ALS and their families and serve as part of the treatment team in collaboration with clinicians from Certified Centers and affiliated clinics. CMs provide critical information and referrals to patients and families, help patients obtain medical and communication-related equipment, connect them with essential resources, advocate for the uninsured, explain medical directives, and offer psychosocial support. This program is available throughout the 31 counties we serve in the state of California and the state of Hawaii. This program provided service to 1,834 persons with ALS. Service was available for 365 days.
ALS Clinic Support -The Golden West Chapter is committed to making sure that people living with ALS have access to specialized care that is based on best practices. Proven by research to help people with ALS live longer and better lives, access to multidisciplinary clinics is one of the cornerstones of the Golden West Chapter's wraparound model of care. Chapter care services staff members are embedded in each clinic, where they act as key members of the multidisciplinary team and provide comprehensive support to persons with ALS and their family members/caregivers. This model of care brings together a team of health care professionals specially trained to address the needs of people living with ALS, allowing them to receive care from each discipline during a single visit. The care team typically includes a neurologist, physical therapist, occupational therapist, respiratory therapist, nurse, dietitian, speech language pathologist, social worker, mental health professional, and an ALS Association chapter liaison. The ALS clinics supported by the Golden West Chapter provide compassionate care in a supportive, family-oriented atmosphere. In addition to supporting established clinics, the Golden West Chapter supports and promotes satellite clinics that improve access to critically needed services provided within this proven multidisciplinary, wraparound model of care.
National ALS Association -As one of 39 chapters affiliated with The ALS Association, the Golden West Chapter provides ongoing financial support to The ALS Association national office to support federal public policy initiatives to improve the lives of patients and families living with ALS as well as global cutting-edge research projects in search of ALS treatments and cures.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Fred B Fisher | President/CEO | 40 | $393,540 |
| Cherryl Goldstein | VP of Development | 40 | $160,265 |
| Sheri Strahl | COO | 40 | $127,250 |
| Jon Asher Garfinkel | VP of Community Outreach | 40 | $126,671 |
| Owen Ward | Board Member (Start 2/19) | 1 | $0 |
| Karen Walker | Board Member | 1 | $0 |
| Kathy Shawyer Maffei | Board Member | 1 | $0 |
| Michele Newman | Board Member/BOR Rep. | 1 | $0 |
| Jonathan Katz Md | Board Member (Start 2/19) | 1 | $0 |
| Gary Galerne | Board Member | 1 | $0 |
| Linda Della | Board Member | 1 | $0 |
| David W Cragg Sr | Board Member | 1 | $0 |
| Julianne Angel | Board Member | 1 | $0 |
| Jan Medusky | Member-at-Large(Start 2/19) | 1 | $0 |
| Stacy Inman | Board Treasurer | 1 | $0 |
| Michael Mcwilliams | Board Secretary | 1 | $0 |
| Patricia Schimbor | Board Vice Chair | 1 | $0 |
| Susan Morris | Board Chair | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202003469349301030_public.xml