Organizations Filed Purposes:
OUR MISSION IS TO PROVIDE GRANTS TO ENABLE ELIGIBLE CHILDREN AND YOUNG ADULTS WITH LYME DISEASE TO RECEIVE PROPER TREATMENT AND MEDICATION AS WELL AS RAISING AWARENESS ABOUT LYME DISEASE.
PROVIDE GRANTS TO CHILDREN AND YOUNG ADULTS WITH LYME DISEASE WHO CANNOT AFFORD TREATMENT.
LYMELIGHT FOUNDATION PROVIDES MEDICAL GRANTS UP TO $10,000 (CUMULATIVE) TO LYME INFECTED CHILDREN AND YOUNG ADULTS WHO CANNOT PAY FOR NECESSARY MEDICATION AND THERAPIES. GRANT FUNDS COVER DOCTOR VISITS, MEDICATIONS, SUPPLEMENTS, LAB TESTING, ALTERNATIVE THERAPIES AND TRANSPORTATION TO OUT OF AREA PHYSICIANS. IN 2019, 239 TOTAL GRANTS WERE AWARDED; 135 TO NEW INDIVIDUALS AND 104 TO EXISTING RECIPIENTS. AS MOST INSURANCE COMPANIES DO NOT COVER THE TREATMENT OF CHRONIC LYME DISEASE, FAMILIES ARE TYPICALLY LEFT ON THEIR OWN TO BATTLE THE DISEASE, OFTEN INCURRING ENORMOUS MEDICAL DEBT. BY PROVIDING CRITICAL TREATMENT, LYMELIGHT BRIDGES THE GAP OF ENORMOUS UNMET NEED. SINCE ITS' INCEPTION IN 2011, LYMELIGHT HAS AWARDED GRANTS TOTALING $5M TO 768 INDIVIDUALS IN 49 STATES.
LYMELIGHT FOUNDATION IS DEDICATED TO EDUCATING THE PUBLIC ON THE TRUTH AND MISCONCEPTIONS ABOUT IDENTIFYING, CONTRACTING AND FIGHTING LYME DISEASE. LYMELIGHT FOUNDATION HOSTS AND PARTICIPATES IN SEVERAL LYME AWARENESS AND FUNDRAISING EVENTS INCLUDING DART FOR ART. ACTIVE SUPPORTERS INCLUDE SINGER-SONG WRITER AVRIL LAVIGNE. LYMELIGHT HAS PARTICIPATED IN AUXILIARY AWARENESS AND FUNDRAISING EVENTS IN 25 STATES.
LYMELIGHT FOUNDATION CONTINUES TO PROMOTE AND UTILLIZE THE VIDEO SERIES CALLED PATIENT TALK. LYMELIGHT COLLABORATED WITH OTHER ORGANIZATIONS TO PRODUCE THE SERIES IN 2017 WHERE REAL PATIENTS TELL THEIR STORIES IN ADDRESSING THE PRACTICAL, PHYSICAL AND EMOTIONAL ISSUES THEY FACED WHEN DEALING WITH A LIFE CHANGING LYME DISEASE MEDICAL DIAGNOSIS. THESE EDUCATIONAL MEDICAL VIDEOS DETAIL THE LONG AND DIFFICULT JOURNEYS FACED BY THOSE WITH LYME DISSEASE. THE VIDEOS ALSO PROVIDE IMPORTANT INFORMATION ABOUT DIAGNOSIS AND TREATMENT PROTOCOLS. THE VIDEO SERIES HAS BEEN EXTREMELY WELL RECEIVED BY BOTH THE LYME COMMUNITY AND BY THE BROADER AUDIENCE OF THE GENERAL PUBLIC. IT HAS BECOME A KEY EDUCATIONAL TOOL.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Nora Thomas | BOARD MEMBER/PROGRAM MGR. | 40 | $124,954 |
| Phyllis Bedford | EXECUTIVE DIRECTOR | 40 | $0 |
| Scott Forsgren | BOARD MEMBER | 5 | $0 |
| Scott Bedford | CHAIRMAN | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202022179349301457_public.xml