Organizations Filed Purposes:
HFNC IS A DONOR-SUPPORTED AND VOLUNTEER-RUN ORGANIZATION SERVING THE NEEDS OF PEOPLE WITH HEMOPHILIA AND RELATED BLEEDING DISORDERS AND IS DEDICATED TO IMPROVING THE LIVES AND INCREASING THE INDEPENDENCE OF INDIVIDUALS CHALLENGED BY THESE DISORDERS. SINCE 1959, HFNC HAS WORKED WITHIN THE LOCAL COMMUNITY TO PROVIDE: A NETWORK OF SUPPORT BY CONNECTING INDIVIDUALS AND FAMILIES AFFECTED BY BLEEDING DISORDERS, DISORDER-RELATED EDUCATION, RECREATIONAL OPPORTUNITIES AND FINANCIAL AND EMOTIONAL SUPPORT.
HEMOPHILIA FOUNDATION OF NORTHERN CALIFORNIA (HFNC) SERVES THE NEEDS OF PEOPLE AFFECTED BY BLEEDING DISORDERS BY ENHANCING QUALITY OF LIFE THROUGH SUPPORT, EDUCATION, OUTREACH AND ADVOCACY.
CAMP HEMOTION - AN ANNUAL WEEKLONG RESIDENTIAL SUMMER CAMP SERVING APPROXIMATELY 100 YOUNG PEOPLE, AGES 7-20, LIVING WITH BLEEDING DISORDERS. FOR MANY YEARS, CAMP HEMOTION HAS SERVED AS HFNC'S PRIMARY WAY TO REACH YOUNG PEOPLE AND PROVIDE THEM WITH THE TOOLS AND SKILLS THEY NEED TO LEAD HEALTHY, VIBRANT AND, IMPORTANTLY, FULL LIVES.
WOMEN'S/MEN'S GROUPS - DESIGNED TO PROVIDE SUPPORT TO PEOPLE FACING THE SAME OR SIMILAR CHALLENGES RELATING TO BLEEDING DISORDERS THROUGH MEETINGS, ONLINE FORUMS,WEBINARS, AND OTHER EDUCATIONAL AND RECREATIONAL ACTIVITIES THAT ARE AVAILABLE THROUGHOUT THE YEAR.
FAMILY INFORMATION DAY - IN PARTNERSHIP WITH OAKLAND'S CHILDREN'S HOSPITAL, HFNC PROVIDES A ONE-DAY EDUCATIONAL SYMPOSIUM DESIGNED TO EDUCATE ATTENDEES ABOUT DEVELOPMENTS IN THE TREATMENT OF BLEEDING DISORDERS AND THE FINANCIAL AND LIFE CHALLENGES THAT ARE ASSOCIATED WITH THEM. APPROXIMATELY 150 INDIVIDUALS ATTEND THE ANNUAL SYMPOSIUM.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Alona Metz | Executive Dir. | 40 | $52,712 |
| Tania Fernandez | Treasurer | 25 | $17,600 |
| Dawn Pollard | President | 20 | $17,518 |
| Vikas Meka | BOARD MEMBER | 0 | $0 |
| Susan Kuhn | BOARD MEMBER | 0 | $0 |
| Robert Seaton | BOARD MEMBER | 0 | $0 |
| Ian Meadow | BOARD MEMBER | 0 | $0 |
| Peter Barbounis | Vice President | 0 | $0 |
| Matthew Jajeh | BOARD MEMBER | 0 | $0 |
| Tony Materna | BOARD MEMBER | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202022879349301547_public.xml