Organizations Filed Purposes:
TO SUPPORT RESEARCH AND CLINICAL TRIALS TO SPEED THE DEVELOPMENT OF TREATMENTS AND CURES FOR LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2D (LGMD2D). FORMED IN SEPTEMBER 2013, THE FOUNDATION IS COMMITTED TO THE DEVELOPMENT AND MAINTENANCE OF INTERNATIONAL PATIENT REGISTRY FOR INDIVIDUALS DIAGNOSED WITH LGMD2D AND TO SUPPORTING RELEVANT SCIENTIFIC RESEARCH.
THE ORGANIZATION HAS DESIGNED AND DEVELOPED ONE (1) PROGRAM IN FURTHERANCE OF ITS CHARITABLE AND EDUCATIONAL PURPOSE.THE PROGRAM IS ENTITLED: LIMB-GIRDLE MUSCULAR DYSTROPHY 2D (LGMD2D). THE ORGANIZATION FURTHERS ITS PURPOSE UNDER THIS PROGRAM BY RAISING MONEY AND SUPPORTING LGMD2D RESEARCH IN A MANNER CONSISTENT WITH THE HOSPITAL STRATEGIC PLAN.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Caroline Barber | TREASURER/SECRETARY | 1 | $0 |
| Bryan Barber | PRESIDENT/CEO | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202101269349302370_public.xml