Organizations Filed Purposes:
We help children reach their full potential after brain surgery to stop seizures by initiating and funding research, providing research-based guides and web content, and providing special education advocacy and parent/school training services.
Effectiveness Hand Arm Bimanual Intensive Training / Teacher's College, Columbia University: Initiated three-year study to address whether hand arm bimanual intensive training is an effective means of improvement use and coordination of both arms and hands in daily living after hemispherectomy surgery.Social Skills, Memory, and Higher Cognitive Function/California Institute of Technology, Fuller Theological Seminary: Initiated one-year study addresses the social skills, memory impairment, and issues with higher cognitive function in adults years after pediatric hemispherectomy surgery.Rochester Institute of Technology: Funded research to develop the design of a 3D printable hand exoskeleton for children born with hemiparesis or who have upper extremity hemiparesis due to stroke, brain injury, or epilepsy surgery.Intensive Mobility Training/Cortical Mapping: Partially funded rehabilitation training as part of UCLA study on cortical mapping post-hemispherectomy.Outpatient Post-Hemispherectomy Rehabilitation Programs: Initiated intensive physical therapy in Los Angeles County, California;Website: Designed and populated new website.Special Education Advocacy and Training: We help parents navigate the special education maze by providing free advocacy services for 20 hours. Thereafter, we charge $75 per hour for advocacy services. We also train parents and school teams on the educational impact of various brain surgeries to stop seizures. This includes writing and disseminating allied publications and guides.Parent and Professional Information: We have expanded our reach beyond hemispherectomy surgery to all brain surgeries that are used to stop seizures in children. This includes providing detailed information in the form of web content and guides.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Monika A Jones Esq | Director/CEO | 35 | $33,600 |
| Bradley R Jones | Treasurer | 1 | $0 |
| Matt Flesch | Director | 1 | $0 |
| Jeffrey Catania Phd | Secretary | 1 | $0 |
| Dr Gary W Mathern | Director | 1 | $0 |
| Luke Shepard | Chairman | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202012659349300311_public.xml