PROJECT SLEEP
PO BOX 292522, LOS ANGELES, CA 90029 project-sleep.com

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Organizations Filed Purposes: Believing in the value of sleep, Project Sleep aims to improve public health by educating individuals about the importance of sleep health and sleep disorders. Project Sleep will educate and empower individuals using events, campaigns and programs to bring people together and talk about sleep as a pillar of health.

NARCOLEPSY AWARENESS PROGRAM (NAP) - THE NARCOLEPSY AWARENESS PROGRAM AIMS TO INCREASE AWARENESS TO KEY AUDIENCES WHO ARE CURRENTLY LACKING KNOWLEDGE AND UNDERSTANDING OF NARCOLEPSY. AT THE SAME TIME, WE WILL REDUCE BOTH SELF-STIGMA AND SOCIETAL STIGMA BY PROVIDING PEOPLE WITH NARCOLEPSY WITH THE LEADERSHIP, ROLE MODELING, AND VITAL OPPORTUNITIES AND RESOURCES TO FEEL HOPE, INSPRIATION, CONNECTION AND EMPOWERMENT TO SUCCEED WITH NARCOLEPSY. NAP PROGRAM TACTICS INCLUDE MEDIA EFFORTS, SPEAKING ENGAGEMENTS, EVERGREEN NARCOLEPSY RESOURCES, FRESH NEWS CONTENT, AND A NARCOLEPSY AWARENESS CAMPAIGN.

Rising Voices of Narcolepsy, a leadership training program to help people with narcolepsy effectively share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond.Narcolepsy is a chronic neurological disorder of the sleep-wake cycle that affects about three million people worldwide. However, public understanding of narcolepsy is limited, with media portrayals associating narcolepsy with comical sleepiness rather than a medical condition. As a result, people with narcolepsy (PWN) often face stigma and isolation as they are mislabeled as antisocial, faking and unmotivated. Misconceptions and low awareness of narcolepsy also perpetuate delays in proper detection and diagnosis.At the same time, communicating about narcolepsy can be challenging. Many aspects of living with narcolepsy are invisible to peers, family, teachers and even medical professionals. The Rising Voices of Narcolepsy program aims to address this unmet need in the narcolepsy community.This program will serve the dual purpose of fostering a new generation of narcolepsy patient-advocates spreading awareness while also empowering participants. Personal stories of health and illness are invaluable public education tools. Audiences are much more likely to empathize and retain information when it is delivered by someone with lived experience, giving a real face to medical terminology and statistics. Moreover, for those with invisible illnesses like narcolepsy, sharing ones story is a powerful way to find connection, validation and understanding. Participants will not only gain valuable communication skills, but will also build confidence in their unique and important stories.

Project Sleeps Jack & Julie Narcolepsy Scholarship is the first-ever national scholarship program supporting students with narcolepsy while also raising narcolepsy awareness in high school and college settings. Project Sleep awarded 14 scholarships in the 2018 Jack & Julie Narcolepsy Scholarship program. Recipients are graduating high school seniors who will each receive $1,000 toward their college education. The 14 students selected accelerate the scholarship program to new heights, having now awarded 50 scholarships totaling $50,000 over the last five years.Narcolepsy is a neurological disorder affecting 1 in 2,000 people worldwide. Symptoms include excessive sleepiness, cataplexy (sudden muscle weakness triggered by emotions), sleep paralysis and frightening hallucinations while falling asleep or waking up.

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