Organizations Filed Purposes:
OUR MISSION IS TO SAVE LIVES AND CURE SCLERODERMA THROUGH PROGRAMS COMMITTED TO EDUCATION, SUPPORT & RESEARCH. ADDITIONALLY, THE SOUTHERN CALIFORNIA CHAPTER IS AN AFFILIATE OF THE NATIONAL SCLERODERMA FOUNDATION AND CONTRIBUTES TO ITS MISSION. SUPPORT: TO HELP PATIENTS AND THEIR FAMILIES COPE WITH SCLERODERMA THROUGH MUTUAL SUPPORT PROGRAMS, PEER COUNSELING, PHYSICIAN REFERRALS AND EDUCATIONAL INFORMATION. EDUCATION: TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH PATIENT AND HEALTH PROFESSIONAL SEMINARS, LITERATURE AND PUBLICITY CAMPAIGNS. RESEARCH: TO STIMULATE AND SUPPORT RESEARCH TO IMPROVE TREATMENT AND ULTIMATELY FIND THE CAUSE OF AND CURE FOR SCLERODERMA AND RELATED DISEASES.
TO SAVE LIVES & CURE SCLERODERMA THROUGH PROGRAMS IN RESEARCH, SUPPORT, EDUCATION & RESEARCH.
PROVIDE PATIENT OUTREACH, EDUCATION, SUPPORT GROUPS AND SERVICES FOR OVER 800 PATIENTS AFFECTED BY SCLERODERMA IN THE SOUTHERN CALIFORNIA, AND BUILD AWARENESS OF THE DISEASE. SUPPORT GROUPS: SUPPORT GROUPS PROVIDE A FORUM TO SHARE FEELINGS, CONCERNS, INFORMATION, AS WELL AS A PLACE TO OFFER PEER SUPPORT AND ENCOURAGEMENT. SOLICITATIONS OR RESEARCH PROJECTS ARE NOT CONDUCTED AT SUPPORT GROUP MEETINGS. SUPPORT GROUPS OFTEN FEATURE SPEAKERS SPECIALIZING IN SCLERODERMA OR RELATED TOPICS. ALL SUPPORT GROUPS ARE FREE OF CHARGE AND OPEN TO EVERYONE, INCLUDING PATIENTS, CAREGIVERS, FAMILY AND FRIENDS. THE FOUNDATION HAS 13 LOCAL SUPPORT GROUPS. MOST GROUPS MEET BI-MONTHLY AND HAVE AN AVERAGE ATTENDANCE OF 25-20 PEOPLE. WITH A TOTAL SERVED AT APPROXIMATELY 1000+ PATIENTS, CAREGIVERS AND FAMILY MEMBERS.EDUCATION DAYS: THE SCLERODERMA FOUNDATION HOSTED TWO PATIENT EDUCATION EVENTS FOR PATIENTS, FAMILY MEMBERS AND CAREGIVERS IN 2019 WITH THE TOTAL NUMBER WHO BENEFITTED APPROXIMATELY 300.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Andrew Emmett | EXECUTIVE DIRECTOR | 45 | $118,461 |
| Laura Fuhrman | DIRECTOR | 1 | $0 |
| Kristy Kubota | DIRECTOR | 1 | $0 |
| Alina Agena | DIRECTOR | 1 | $0 |
| Sharon Friedman | DIRECTOR | 1 | $0 |
| Stephen Elrod | DIRECTOR | 1 | $0 |
| Les Wood | DIRECTOR | 1 | $0 |
| Chris Corman | DIRECTOR | 1 | $0 |
| Martha Soto | DIRECTOR | 1 | $0 |
| Joel Cherman | DIRECTOR | 1 | $0 |
| Helen Greenburg | DIRECTOR | 1 | $0 |
| David Parker | SECRETARY | 2 | $0 |
| Chris Pettit | TREASURER | 2 | $0 |
| Dr Dan Furst | VICE PRESIDENT | 2 | $0 |
| Peggy Hickman | PRESIDENT | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202031899349301848_public.xml