Organizations Filed Purposes:
RAISE FUNDS AND MAKE GRANTS FOR RESEARCH INTO A TREATMENT OR CURE FOR LIMB GIRDLE MUSCULAR DYSTROPHY TYPE 2C (GAMMA SARCOGLYCANOPATHY).
DONATIONS TOTALING $117,197 TO THE UNIVERSITY OF CHICAGO MEDICAL CENTER, $81,200 TO THE MEDICAL CENTER OF NORTHWESTERN UNIVERSITY.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Marcia Worthing | DIRECTOR | 0 | $0 |
| Robin Drucker | DIRECTOR | 0 | $0 |
| Marc Bodnick | DIRECTOR | 0 | $0 |
| Kent Frewing | SECRETARY | 1 | $0 |
| Charlotte Drew | TREASURER | 4 | $0 |
| Scott Frewing | PRESIDENT | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202023219349312807_public.xml