Organizations Filed Purposes:
TESS RESEARCH FOUNDATION'S GOAL IS TO FIND BETTER TREATMENT OPTIONS FOR SLC13A5 DEFICIENCY, A SEVERE FORM OF EPILEPSY BEGINNING IN INFANCY. SLC13A5 DEFICIENCY IS A NEWLY DISCOVERED, RARE DISEASE. TESS RESEARCH FOUNDATION FUNDS MEDICAL RESEARCH, CONNECTS DOCTORS AND PATIENTS TO RESEARCHERS, AND RAISES AWARENESS AND PROVIDES SUPPORT AND EDUCATION TO AFFECTED FAMILIES THROUGH A WEBSITE, EMAILS, AND AN ONLINE SUPPORT GROUP.
EDUCATION, FAMILY SUPPORT AND AWARENESSKIM NYE ATTENDED CONFERENCES AND RAISED AWARENESS BY HAVING BOOTHS AT RELEVANT SCIENTIFIC CONFERENCES AND MEETINGS. EMILY HSU AQUIRED, STORED AND CURATED PATIENT REGISTRY INFORMATION FOR FAMILIES DIAGNOSED WITH SLC13A5 DEFICIENCY, MAINTAINED OUR WEBSITE AND OTHER DATABASES, AND CREATED EDUCATIONAL MATERIALS
CONFERENCETESS RESEARCH FOUNDATION CONTRACTED EMILY HSU TO APPLY FOR GRANTS AND OTHER FUNDING SOURCES AND ORGANIZE OUR SLC13A5 RESEARCH ROUNDTABLE
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| E Robert Wassman | TRUSTEE | 3 | $0 |
| Dennis Mcdonnell | TRUSTEE | 3 | $0 |
| Judi Rees | TRUSTEE | 1 | $0 |
| Paula Gani | TRUSTEE | 5 | $0 |
| Lee Scheuer | TRUSTEE | 5 | $0 |
| Kevin Mcdonnell | TRUSTEE | 3 | $0 |
| Adam Alberti | TRUSTEE | 3 | $0 |
| Courtney Lodato Alberti | TRUSTEE | 2 | $0 |
| Zachary Nye Phd | TREASURER | 3 | $0 |
| Jordan Hunt | SECRETARY | 3 | $0 |
| Kimberly Nye | PRESIDENT | 40 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202043189349303949_public.xml