ORAL CANCER FOUNDATION HILL
3419 VIA LIDO 205, NEWPORT BEACH, CA 92663 www.oralcancer.org

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Organizations Filed Purposes: THE ORAL CANCER FOUNDATION IS A NATIONAL PUBLIC SERVICE, NON-PROFIT ENTITY DESIGNED TO REDUCE SUFFERING AND SAVE LIVES THROUGH PREVENTION, EDUCATION, RESEARCH, ADVOCACY, AND SUPPORT ACTIVITIES.

OCF 2019 990 NARRATIVE 20189 WAS ANOTHER YEAR OF SUCCESSFUL MISSION ACCOMPLISHMENTS, PARTICULARLY IN THE FOUNDATIONS' PUBLIC OUTREACH AND DISSEMINATING ACTIONABLE INFORMATION MISSIONS. THIS WAS FACILITATED BY INCREASED VISIBILITY OF THE FOUNDATION THROUGH AN ORGANIC SPREAD OF OUR LARGE INTERNET PRESENCE. A MAJOR REBUILD OF OUR INTERNET PRESENCE WAS BEGUN IN THE LAST QUARTER OF 2014, BUT ANNUALLY WE HAVE ADDED OUR SATELLITE WEB SITES ON ORAL CANCER THAT ACCESS CURRENT AND ARCHIVED NEWS STORIES ABOUT OUR DISEASE, AND A SEPARATE EDUCATIONAL SITE FOR THE PUBLIC ON SELF-SCREENING TECHNIQUES FOR EARLY DISCOVERY AND SELF-REFERRAL OF SUSPECT TISSUES IN THEIR ORAL ENVIRONMENT TO NAME A COUPLE. THIS MOBILE FRIENDLY MOVE ALSO HELPED GENERATE MANY NEW PUBLIC INDIVIDUAL DONORS, AND ACCELERATED PUBLIC ENGAGEMENT WITH THE DISEASE AND THE FOUNDATION. PRIVATE DONATIONS WERE UP ALTHOUGH OCF CONTINUES TO HAVE FEW CORPORATE PHARMA SPONSORS, AND THAT THE US ECONOMY HAS BEEN DOING WELL BUT IS STILL VERY FLAT PARTICULARLY FOR THE MIDDLE CLASS; OUR PRIMARY DONOR BASE, WHICH HAS LIMITED GROWTH. ANOTHER COMPONENT OF DONATIONS HAS BEEN THE OCF WALK/RUN EVENTS AROUND THE COUNTRY PUT ON BY OUR VOLUNTEERS. WE HAVE LOST SOME OF THOSE EVENTS AND GAINED SOME, SO THIS IS A NEUTRAL SITUATION FINANCIALLY. THE FOUNDATION'S PUBLIC OUTREACH EFFORTS CONTINUED IN 2019, AND FOCUSED HEAVILY ON THE ROLE OF THE HPV VIRUS AS AN ORAL CANCER CAUSE, AND HOW COMMON INFECTION WITH IT IS IN THE US. OCF STAFF MEMBERS AND KEY OPINION/SCIENCE LEADERS SPOKE AT NUMEROUS PUBLIC EVENTS ON HPV AND VACCINATION. WE HAVE CONTINUED LAST YEAR'S EFFORT TO INCREASE SPEAKING ENGAGEMENTS IN THE DENTAL COMMUNITY, AS THEY ARE BECOMING AN IMPORTANT PART OF THE EARLY DISCOVERY PARADIGM AND EDUCATION OF THE PUBLIC ON HPV. OUR VOLUNTEER RDH ADVISORY BOARD HAS BEEN AN IMPORTANT PART OF ACCOMPLISHING THIS OUTREACH. THERE IS A GREAT DEAL OF MISINFORMATION ABOUT THE HPV VIRUS AND THE RELATIVE RISK THIS POSES TO AMERICANS. OCF HAS PARTNERED TO THE CDC AND THE 65 TOP CANCER TREATMENT CENTERS IN AMERICA TO PUT OUT A UNIFIED MESSAGE ABOUT HPV VACCINATION, AND HAVE DONE NUMEROUS WEB BLASTS RELATED TO CORRECT INFORMATION REGARDING MEANS OF TRANSMISSION OF THE VIRUS, AND THE VERY LOW CONVERSION RATE (1%) OF ORAL HPV INFECTIONS TO ACTUAL CANCERS LATER IN LIFE. METRICS OUTSIDE OF HITS ON THE WEB INFORMATION ARE HARD TO QUANTIFY, BUT WE BELIEVE THAT AN EFFORT MUST BE MADE TO COUNTER THE ANTI- VACCINE MOVEMENT AND TO BELAY THE UNNECESSARY FEAR THAT EXISTS IN PEOPLE WHO ARE GETTING INCORRECT INFORMATION, AND MUST BE A MULTI-YEAR ONGOING DIRECT EXPENSE EFFORT. WE HAVE NO FINANCIAL PARTNER IN DOING THINGS SO THE COSTS TO OUR BOTTOM LINE ARE SOON TO BECOME AN ISSUE. SEARCH FOR A PARTNER CONTINUES. IN 2014 WE BEGAN SPONSORSHIP OF TWO RODEO COMPETITORS WHO RIDE AND COMPETE IN CLOTHING BEARING OCF'S MESSAGING/BRAND, WHICH ACCELERATED TO MORE RODEOS IN 2018. WHILE THEY ARE NOT TASKED WITH CHANGING ADULT BEHAVIOR, THEIR ANTI-TOBACCO MESSAGE IS GEARED TOWARD YOUNG KIDS AT RODEOS WITH A MESSAGE OF "BE SMART. DON'T START." THEIR CONVERSATIONS WITH YOUNG PEOPLE AT THE RODEOS THEY ATTEND AFTER THEIR COMPETITIVE TIME IN THE ARENA, HAVE BEEN WELL RECEIVED AND THEY CONTINUE TO GET ATTENTION FOR THEIR EFFORTS IN LOCAL AREA MEDIA. HTTP://WWW.ORALCANCERFOUNDATION.ORG/SUPPORT-OCF/RODEO-TOBACCO-OUTREACH.PHP THE STORY OF A SMALL NON-PROFIT LIKE OCF BEING THE FIRST CHARITY TO EVER SPONSOR A RODEO COMPETITOR, AND THE MESSAGING FROM THESE TWO OCF ANTI- TOBACCO SPOKESPEOPLE CONTINUES TO BE PICKED UP BY MEDIA OUTLETS ACROSS THE US. BOTH CODY AND CARLY HAVE GIVEN NUMEROUS INTERVIEWS BOTH TO NEWSPAPERS AND ON PUBLIC TV SHOWS, SUCH AS GOOD MORNING UTAH, AND GOOD MORNING RENO. IN 2015 OCF PARTNERED OUR SUPPORTERS IN THE RDH COMMUNITY WITH OUR RODEO EFFORTS TO ENGAGE IN FREE PUBLIC SCREENINGS OF ATTENDEES AT RODEOS WHERE OUR RIDERS ARE APPEARING FOR EARLY SIGNS OF ORAL CANCERS. THAT EFFORT HAS CONTINUED USING VOLUNTEER SCREENERS IN 2018 WITH ADDITIONAL RODEOS BEING ADDED. RECEPTION BY RODEO PROMOTERS, AND THE PROFESSIONAL RODEO COWBOYS ASSOCIATION THAT RUNS MOST EVENTS AROUND THE COUNTRY HAS BEEN VERY POSITIVE. WE ARE NOW BEING ASKED TO ATTEND NEW EVENTS RATHER THAN HAVING TO ASK FOR PERMISSION TO ATTEND. RURAL AMERICA AND THE RODEO CROWD WHICH IS NOW VERY MUCH A FAMILY SPORT IS ONE OF THE LAST STRONGHOLDS OF TOBACCO. WE ARE THE ONLY NON-PROFIT WE HAVE SEEN AT THESE EVENTS ENGAGED IN THAT COMMUNITY TO BRING DOWN THE IMPACT OF TOBACCO USE. IN 2019, WE ADDED MANY NEW AWARENESS EVENTS AROUND THE COUNTRY AS A RESULT. IN 2016 AT THE IDEAS HEIGHT, THE FOUNDATION CONDUCTED A TOTAL OF 53 EVENTS IN MAJOR CITIES AS A RESULT OF THESE NEW RELATIONSHIPS, MANY OF WHICH COME FROM THE RANKS OF THE RDH COMMUNITY. THIS NUMBER HAS DECLINED SUBSTANTIALLY BUT THERE ARE STILL MANY ANNUAL EVENTS. EACH EVENT HAD NUMEROUS LARGE STRATEGIC PARTNERS, SUCH AS DENTAL SCHOOLS, FORTUNE 500 CORPORATIONS, AND CANCER TREATMENT CENTERS AS CO-SPONSORS. WITH THESE NEW PARTNERS ASSISTING IN THE FUNDING OF THESE EVENTS, THE COSTS TO OCF CONTINUES TO BE SIGNIFICANTLY REDUCED OVER PREVIOUS YEARS WHEN THE FOUNDATION FUNDED EVENTS ON ITS OWN. THE COMMUNITY OUTREACH THROUGH THESE EVENTS ARE SIGNIFICANT; WITH MANY EVENTS REACHING HUNDREDS OF PARTICIPANTS AND WITH EVEN MORE INDIVIDUALS PARTICIPATING AS NON-ATTENDING FINANCIAL SUPPORTERS OF AN INDIVIDUAL AT THE EVENT. THAT ABILITY TO HAVE NON-ATTENDING DONORS TO FINANCIALLY SUPPORT THOSE RUNNING OR WALKING REQUIRED SIGNIFICANT INVESTMENTS IN PROPRIETARY, ANNUALLY LEASED, SOFTWARE TO MANAGE THAT CAPABILITY. REALIZING THE SIGNIFICANCE OF THESE LARGER EVENTS MAKING NEWS IN THE LOCAL COMMUNITY, WHICH IN TURN RAISES PUBLIC AWARENESS OF THE DISEASE, THE RISK FACTORS FOR GETTING IT, AND THE EARLY SIGNS AND SYMPTOMS THAT A LAY PERSON MIGHT NOTICE AND SEEK HELP FOR; THE FOUNDATION CONTINUED TO INVEST IN OUR WEB BASED SOFTWARE THAT FACILITATES AN INDIVIDUAL'S EFFORT TO BUILD A SUPPORT TEAM AND REACH A LARGER COMMUNITY OF PEOPLE VIA THEIR EMAIL, FACEBOOK, AND TWITTER FRIENDS AND FOLLOWERS. THE NEW SOFTWARE ALLOWS AUTO GENERATED EMAIL MESSAGES TO THOSE WHO ARE PARTICIPATING AND SUPPORTING TO ENGAGE THEM FURTHER. WE ANTICIPATE THAT THE CONTINUED IMPACT OF THIS IN 2020 TO ALLOW US TO MAKE A SIGNIFICANT JUMP IN THE NUMBER OF INDIVIDUALS THAT WE CAN REACH WITH GOOD SCIENCE-BASED INFORMATION THAT THEY CAN APPLY IN THEIR LIVES. IN 2019 OUR CONTRIBUTIONS TO HPV/ORAL-OROPHARYNGEAL CANCER RESEARCH CONTINUED, ADVANCING WHAT WE KNOW ABOUT THIS FAST-GROWING ORAL CANCER ETIOLOGY. WE ALSO SAW PUBLISHED THE OUTCOMES FROM PREVIOUS YEARS' RESEARCH FUNDING, IN PRESTIGIOUS PEER REVIEWED JOURNALS SUCH AS THE JOURNAL CANCER AND THE JOURNAL OF THE NATIONAL CANCER INSTITUTE. OCF SPONSORED RESEARCHERS ALSO SPOKE AT SEVERAL LARGE HEAD AND NECK CANCER CONFERENCES TO THEIR PEERS AND MEMBERS OF THE TREATMENT COMMUNITY, AND OCF CONTINUED TO WORK BEHIND THE SCENES TO SEE THEM GET THESE SPEAKING OPPORTUNITIES. 2019 ALSO SAW A LONG-TERM COMMITMENT WE HAVE HAD TO DR. MAURA GILLISON'S AT MDACC WORK IN THE IMMUNE CHECK POINT INHIBITOR RESEARCH EFFORT RESULT IN DELIVERY OF THE CLINICAL TRIALS RESULTS AT THE ASCO CONFERENCE. PDL-1 DRUGS LOOKED AT IN THIS WORK ARE PROVING TO BE THE MOST IMPORTANT ADVANCEMENT IN CANCER TREATMENT ACROSS A WIDE VARIETY OF TUMOR TYPES IN MORE THAN 50 YEARS, AS THEY INVOLVE REMOVING CHECKPOINTS FROM THE PATIENT'S OWN IMMUNE SYSTEM ALLOWING IT TO BECOME MORE ENGAGED IN THE DESTRUCTION OF THE CANCER. THE ACTUAL PAPERS WERE PUBLISHED IN 2016 AND 2017 IN THE NEW ENGLAND JOURNAL OF MEDICINE, AND WE HAVE SEEN ALREADY A PRESS RELEASE RELATED TO THIS EFFORT FROM THE AMERICAN ACADEMY OF CLINICAL RESEARCH WHERE OCF WAS MENTIONED AS A DONOR TO THE WORK. WE HAVE ALSO SEEN PUBLISHED AND IMPORTANT ARTICLE WE CO-SPONSORED RELATED TO MOLECULAR AND GENOMIC MARKERS THAT NOW GIVES US IMPORTANT TARGETS FOR THERAPY DEVELOPMENT AND EARLY DISCOVERY OPPORTUNITIES. IN THE ANNUAL APRIL, ORAL CANCER AWARENESS MONTH NATIONAL ACTIVITIES, OCF AGAIN BROKE RECORDS IN THE NUMBER OF SCREENING SITES, AND FREE SCREENINGS TO THE AMERICAN PUBLIC CONDUCTED WITH OUR PARTNERS. WITH OVER 2,700 SCREENING EVENTS NATIONALLY IN APRIL, THE FOUNDATION'S PRIVATE PRACTICE DENTAL AND OTOLARYNGOLOGY PARTNERS CONDUCTED OVER 73,000 FREE ORAL CANCER SCREENINGS IN COMMUNITIES ACROSS THE COUNTRY. WE HAD STRONG STRATEGIC PARTNERS FOR THESE EVENTS, INCLUDING BRISTOL-MYERS SQUIBB, HENRY SCHEIN DENTAL, LILLY ONCOLOGY, AND LED DIAGNOSTICS. WE ALSO WERE PARTNERED WITH PROFESSIONAL SOCIETIES INCLUDING; THE ACADEMY OF GENERAL DENTISTRY, THE AMERICAN ACADEMY OF ORAL AND MAXILLOFACIAL SURGERY, THE ACADEMY OF ORAL MEDICINE, THE ACADEMY OF PERIODONTOLOGY, THE AMERICAN DENTAL HYGIENE SOCIETY, THE ACADEMY OF ORAL PATHOLOGY AND NUMEROUS STATE DENTAL HYGIENE ASSOCIATIONS. THIS WAS THE 19TH YEAR THAT OCF HAS CONDUCTED THESE FREE SCREENING EVENTS, AFTER PIONEERING THE IDEA IN 1999. WHILE THIS IS AN EXPENSIVE MONTH-LONG PART OF OUR EFFORTS A

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Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/202042889349302169_public.xml