Organizations Filed Purposes:
Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems.
Sponsored Precision Medicine Conference to explore delivery of targeted therapies to patients.
Conducted first SynGap Round Table with stakeholders at the American Epilepsy Society annual conference.
Community engagement, awareness, education including Global Genes Advocacy Summit.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Rebecca Kohlhepp | Treasurer | 2 | $0 |
| Phil Randazzo | Chairman | 1 | $0 |
| Mike Graglia | Director | 15 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202001979349305020_public.xml