Organizations Filed Purposes:
THE LAM TREATMENT ALLIANCE IS A NON-PROFIT ORGANIZATION DEDICATED TO CATALYZING AND FUNDING RESEARCH AND FOSTERING PATIENT AND PATIENT-RESEARCHER PARTNERSHIPS IN ORDER TO FIND A TREATMENT FOR LAM (LYMPHANGIOLEIOMYOMATOSIS)IN THE FASTEST TIME POSSIBLE.
TO CARRY OUT ITS PURPOSE, THE LAM TREATMENT ALLIANCE RUNS PROGRAMS DEDICATED TO A) MOBILIZING EXPERTISE (AD HOC MEETINGS YEAR ROUND; MONTHLY SEMINAR SERIES; INTERNATIONAL STATE OF THE SCIENCE SUMMITS; RECRUITMENT OF RESEARCHES); B) CONNECTING RESEARCHERS AND PATIENTS (STRATEGIZING FOR MULTI-DISCIPLINARY CLINICAL CARE; PATIENT SUPPORT; GLOBAL PATIENT DATA AND TRIAL NETWORK); C) ELIMINATING BARRIERS TO MOVING SCIENCE FORWARD (ENSURING FAST AND EFFECTIVE TISSUE PROCUREMENT, BANKING, DISTRIBUTION; CELL ISOLATION, CULTURING, CELL LINE; ANIMAL MODEL DEVELOPMENT) AND D) FAST-TRACKING CORE RESEARCH (ACCESSING LEADING EDGE EXPERTISE AND TECHNOLOGIES AND FUNDING SCIENTIFIC COLLABORATIONS FOR GREATEST IMPACT)
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Richard Abrusci | President | 45 | $0 |
Steven Shedd | Treasurer | 13 | $0 |
Ron Dorazio Md | BOARD MEMBER | 13 | $0 |
Gail Ebner | BOARD MEMBER | 13 | $0 |
Anne Levine | BOARD MEMBER | 13 | $0 |
John Rachlin Jd Mph | BOARD MEMBER | 13 | $0 |
Steven M Niemi Dvm Daclam | BOARD CHAIR | 13 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201423219349308992_public.xml