Organizations Filed Purposes:
INDIVIDUALS WITH PRADER-WILLI SYNDROME (PWS) SHOULD HAVE THE OPPORTUNITY TO PURSUE THEIR HOPES AND DREAMS TO THE FULL EXTENT OF THEIR TALENTS AND CAPABILITIES. THE SUCCESS OF PEOPLE WITH PWS DEPENDS GREATLY UPON THE KNOWLEDGE AND SUPPORT OF THE COMMUNITY AROUND THEM. THE ORGANIZATION PROVIDES INDIVIDUALS WITH PWS, THEIR FAMILIES, AND PROFESSIONALS WITH A STATE NETWORK OF INFORMATION, ADVOCACY AND SUPPORT SERVICES.
TO PROVIDE INDIVIDUALS WITH PRADER-WILLI SYNDROME, THEIR FAMILIES, AND PROFESSIONALS WITH A STATE NETWORK OF INFORMATION, ADVOCACY AND SUPPORT SERVICES.
AWARENESS PROGRAMS - PRADER-WILLI CALIFORNIA FOUNDATION HELD NUMEROUS EVENTS TO RAISE THE PUBLIC'S AWARENESS OF PWS INCLUDING: A STATEWIDE WALKATHON THAT TOOK PLACE IN COMMUNITY PARKS IN LONG BEACH, SAN FRANCISCO, AND SAN DIEGO; PARTICIPATION AS AN OFFICIAL CHARITY IN THE JETBLUE LONG BEACH MARATHON; AND PRODUCING AN ANNUAL HOLIDAY GREETING CONTAINING INFORMATION ABOUT PWS. WE ALSO WORKED WITH CA STATE SENATOR ON SR-28 DECLARING MAY AS PWS AWARENESS MONTH IN CALIFORNIA
EDUCATIONAL PROGRAMS - PWCF HELD OUR ANNUAL STATE CONFERENCE AND PROVIDED CRITICAL EDUCATION TO PARENTS, TEACHERS, PHYSICIANS, AND OTHER PROFESSIONAL CARE PROVIDERS. A CONCURRENT YOUTH & ADULT CONFERENCE SERVED CHILDREN AND ADULTS WITH PWS AND THEIR SIBLINGS. WE PRODUCED A PWS BEHAVIOR MANAGEMENT TRAINING SERIES AND A SCHOOL IEP EDUCATION TRAINING PROGRAM, PROVIDED DOZENS OF EDUCATIONAL IN-SERVICE TRAINING SESSIONS TO GROUP HOME PROVIDERS THROUGHOUT CALIFORNIA. PWCF PRODUCED FOUR QUARTERLY NEWSLETTERS THAT CONTAINED EDUCATIONAL ARTICLES, RESEARCH STUDIES AND SUBJECT RECRUITMENT OPPORTUNITIES, SUPPORT OPPORTUNITIES, AND OTHER VALUABLE INFORMATION. WE DISTRIBUTED EDUCATIONAL DVDS, BOOKS, AND OTHER EDUCATIONAL MATERIALS.
SUPPORT & ADVOCACY PROGRAMS - PWCF'S PRADER-WILLI SYNDROME CAMP IS THE ONLY MEDICALLY - SPECIALIZED CAMP IN THE STATE OF CALIFORNIA THAT EXCLUSIVELY SERVES PERSONS WITH PWS. SERVED 59 CAMPERS RANGING IN AGE FROM 8 65 YEARS, PROVIDED CRITICAL RESPITE TO EACH CAMPER'S FAMILY MEMBERS OR CARE PROVIDERS. PWCF SUPPORTED THREE PWS CLINICS THROUGHOUT THE STATE TREATING HUNDREDS OF CHILDREN AND ADULTS WITH PWS. PWCF FACILITATED SUPPORT GROUPS, WROTE LETTERS OF ADVOCACY, AND ACCOMPANIED PARENTS AND FAMILY MEMBERS TO SCHOOL MEETINGS, REGIONAL CENTER MEETINGS, AND HEARINGS. EACH OF THESE PROGRAMS SERVED TO PROVIDE FAMILIES WITH NETWORKING AND SUPPORT OPPORTUNITIES SO THEY FEEL LESS ISOLATED AND MORE CONNECTED WITH OTHER PWS FAMILIES AND PROFESSIONALS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Emily Dame | Executive Dir. | 40 | $61,000 |
| Roger Goatcher | Director | 0.96 | $0 |
| Venkat Paruchuru | Director | 0.96 | $0 |
| Kristen Amarasekera | Director | 0.57 | $0 |
| Jamie Burns | Director | 0.38 | $0 |
| Christopher Patay Esq | Director | 0.96 | $0 |
| Rodney Dong | Director | 7.69 | $0 |
| Derek Pamukoff Phd | Director | 0.96 | $0 |
| Wendy Young | Secretary | 1.15 | $0 |
| Nisha Mehta | Treasurer | 2.88 | $0 |
| Daniela Rubin Phd | Vice President | 2.88 | $0 |
| Diane Kavrell | President | 4.81 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202022909349301327_public.xml