Organizations Filed Purposes:
ZERO BREAST CANCER'S (ZBC) MISSION IS TO PROMOTE BREAST CANCER RISK REDUCTION THROUGH TRANSLATION OF SCIENTIFIC RESEARCH AND EVIDENCE-BASED RECOMMENDATIONS THAT SUPPORT HEALTH AND WELLNESS AT KEY STAGES OF LIFE. WE ENVISION A WORLD WITH ZERO BREAST CANCER.
COMMUNITY-ENGAGED RESEARCH. FROM THE OUTSET, ZBC HAS DIFFERENTIATED ITSELF FROM OTHER BREAST CANCER ORGANIZATIONS THROUGH OUR UNIQUE INVOLVEMENT IN RESEARCH. ZBC PARTNERS WITH SCIENTISTS FROM UNIVERSITIES AND CLINICAL ORGANIZATIONS ON MULTIPLE LEVELS TO REPRESENT THOSE AFFECTED BY THE DISEASE AND TO DISSEMINATE FINDINGS FROM SCIENTIFIC STUDIES FOCUSED ON CAUSES OR PREVENTION OF PRIMARY OR RECURRENT BREAST CANCER. IN 2019, ZBC PARTNERED WITH RESEARCHERS IN THREE AREAS.1) PATHWAYS PROJECT: THIS PROSPECTIVE STUDY OF BREAST CANCER SURVIVORSHIP FOLLOWS A COHORT OF 4,505 WOMEN WHO WERE DIAGNOSED WITH BREAST CANCER IN THE KAISER PERMANENTE NORTHERN CALIFORNIA HEALTH CARE SYSTEM. IN 2016, THE NATIONAL CANCER INSTITUTE (NCI) AWARDED A MULTI-YEAR GRANT TO CONTINUE PATHWAYS, WHICH INCLUDED FUNDING FOR A COMMUNITY ADVISORY BOARD (CAB), AND DURING THE LAST QUARTER OF 2017 ZBC INITIATED THE FORMATION OF THIS CAB. IN 2018 ZBC BEGAN QUARTERLY MEETINGS OF THE 11 CAB MEMBERS IN ORDER TO HEAR ABOUT RESEARCH RESULTS AND TO PRIORITIZE and develop topics for an educational campaign for people after active breast cancer treatment. Staff also began meeting with breast care coordinators across KP Northern California to share research results, for additional input on topics, and to facilitate dissemination.In 2019, the staff and CAB produced the first article for the Pathways Study newsletter. The topic, Memory and Thinking Problems after Breast Cancer, resonated with many of the more than 3000 study members who received the newsletter and increased interest in the study. ZBC continues to act as a co-investigator on the Study and has joined a sub-study of the role of neighborhood environments on cardiovascular disease risk among survivors.2) Breast Cancer and the Environment across Generations: in 2019, ZBC continued to act as a community partner on a four-year grant from the California Breast Cancer Research Program to the Child Health and Development Study seeking to better understand the role of environmental chemicals in breast cancer. ZBC convenes and facilitates an Advisory Group to translate scientific evidence about the role of endocrine disrupting chemicals on breast cancer risk into materials that will engage and inspire healthy changes in the behavior of young adults before procreation.3) Advisors on breast health education: in 2019, ZBC staff members were invited by UCSF and the Public Health Institutes Alcohol Research Group to join a group of expert advisors for a new CBCRP-funded effort to educate young women about the increased breast cancer risk associated with alcohol consumption.
Adult educational and outreach programs. In 2019, ZBC continued to pursue a dual strategy of reaching our intended audience in person and through multiple digital channels including our website, social media postings on two Facebook pages, Instagram, Twitter, LinkedIn, blogs and an e-newsletter: * blog topics included program updates and interviews with community members, board members and volunteers. In addition, reviews of reliable and informative books, web-sites and mobile applications (apps) are published. * the newsletters served as a platform to share information on topics such as the following: new research, services for breast cancer survivors, updates on progress in expanding zbc educational materials, ZBC and partner events, assist researchers in their efforts to recruit study participants as well as opinion pieces about the challenges of the way a serious disease such as breast cancer is portrayed and experienced in our culture. *our website was updated to include a Spanish-language section and more Spanish-language resources were added to our website.In 2019, we participated in several breast cancer conferences throughout California and out of state to reach advocates, survivors, health care professionals and industry contacts. We created and deployed engaging and bold displays of our materials at these different forums. In particular we focused on building connections with and outreach to the Latinx community in the San Francisco Bay Area.In 2019, ZBC continued a partnership with Women's Cancer Resource Center (WCRC) based in Berkeley, California. The two organizations signed a memorandum of understanding and a space sharing agreement so that a member of the ZBC team would be based on the premises owned by WCRC and would be an additional onsite resource for both the staff and the clients of WCRC. In turn the staff and clients have enabled ZBC to increase its understanding of the needs of breast cancer survivors from underserved communities.
TEENS AND YOUTH EDUCATIONAL AND OUTREACH PROGRAMS. ZBC CREATED TWO UNIQUE CAMPAIGNS AIMED AT TEENS AND YOUTH WHICH WE HAVE CONTINUED TO MAKE AVAILABLE FREE OF CHARGE.1) 13 Ways to Reduce Your Risk of Breast Cancer campaign: in 2019, this campaign was extended to community clinics and materials were distributed during breast cancer awareness month throughout the Bay Area, Southern California and even New York. The Tamalpais school district in Marin County and a school in the San Francisco Unified School District invited ZBC to return for a fourth year in a row to engage students in a fun, interactive lunch activity about breast cancer risk reduction. Freshmen through seniors of all genders participated in a spinning wheel activity that promotes deeper discussion on the interplay between lifestyle, environmental factors and biological variables that can increase or decrease risk. Two schools in Sonoma County invited ZBC staff to lunchtime and in-class presentations. 2) Girls' New Puberty campaign: the origins and expansion of this campaign were explained in detail in 990 returns in 2016, 2017 and 2018. In 2019, a digital marketing firm was hired to create an e-book, Facebook ads and email list to further distribute the campaign. Additional resources in Spanish were also compiled and shared on our website.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Genevieve Gandal | Executive Dir. | 40 | $50,008 |
Rose Barlow | Executive Dir. | 30 | $36,392 |
Kevin Gay | Treasurer | 1 | $0 |
Lexi Mele-Algus | Secretary | 1 | $0 |
Jt Peterson | MEMBER | 1 | $0 |
Arbella Parrot | MEMBER | 1 | $0 |
Judy Wetterer | Vice President | 1 | $0 |
Melissa Felder | President | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013099349301921_public.xml