Organizations Filed Purposes:
TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.
SUPPORTS RESEARCH TO ADVANCE THE UNDERSTANDING AND TREATMENT OF PRADER-WILLI SYNDROME
THROUGH THE IMPLEMENTATION OF TRANSLATIONAL RESEARCH PROGRAMS, THE MANAGEMENT OF A WORLD-CLASS GRANTS PROGRAM, AND THE DEVELOPMENT OF PRADER WILLI SYNDROME (PWS) RESEARCH TOOLS, THE FOUNDATION FOR PRADER-WILL RESEARCH (FPWR) ADVANCES RESEARCH IN ORDER TO DEVELOP NEW TREATMENTS FOR PWS AND IMPROVE THE HEALTH AND WELL-BEING OF THOSE WITH PWS. UNDER THE GUIDANCE OF OUR SCIENTIFIC ADVISORY BOARD THROUGH A CAREFULLY MANAGED GRANTS PROCESS, FPWR SELECTS RESEARCH PROJECTS BASED ON THE COLLABORATIVE INPUT OF RESEARCHERS AND PARENTS, CHOOSING PROJECTS THAT ARE BOTH SCIENTIFICALLY MERITORIOUS AND HIGHLY RELEVANT FOR INDIVIDUALS WITH PWS AND THEIR FAMILIES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| John Walter | CEO | 40 | $270,465 |
| Nathalie Kayadjanian | DIRECTOR OF TRANSLATIONAL RESEARCH | 40 | $181,695 |
| Theresa Strong | DIRECTOR OF RESEARCH PROGRAMS | 40 | $149,861 |
| Susan Hedstrom | EXECUTIVE DIRECTOR | 40 | $71,284 |
| Paul Wissman | BOARD MEMBER | 0.5 | $0 |
| Jonathan Sebat | BOARD MEMBER | 0.5 | $0 |
| David Pfieffer | BOARD MEMBER | 0.5 | $0 |
| Guy Niedorkom | BOARD MEMBER | 0.5 | $0 |
| Jack Jones | BOARD MEMBER | 0.5 | $0 |
| Drew Harman | BOARD MEMBER | 0.5 | $0 |
| Katie Gilliam | BOARD MEMBER | 0.5 | $0 |
| Brian Dula | BOARD MEMBER | 0.5 | $0 |
| Dana Capobianco | BOARD MEMBER | 0.5 | $0 |
| Scott Arant | BOARD MEMBER | 0.5 | $0 |
| Ian Alberg | BOARD MEMBER | 0.5 | $0 |
| Brent Snyder | TREASURER | 0.5 | $0 |
| Jason Waldrop - Treasurer | (THRU 05/2019); BOARD MEMBER | 0.5 | $0 |
| Jeannine Kowal | SECRETARY | 0.5 | $0 |
| Alicia Secor | VICE PRESIDENT | 0.5 | $0 |
| Daniel Chorney | PRESIDENT | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202043219349303884_public.xml