PARENT HEART WATCH
2624 Whitman Drive, Wilmington, DE 19808 www.parentheartwatch.org

---

Organizations Filed Purposes: PHW is the only national voice solely dedicated to protecting youth from sudden cardiac arrest and preventable sudden cardiac death. PHW leads and empowers others by educating and advocating for change.

PHW is the only national voice solely dedicated to protecting youth from sudden cardiac arrest.

Heart to HeartThis dynamic three-day education platform kicks off Operation Prevention each January through a total immersion in the latest research and best practice protocols from industry experts on prevention. Attendees include Parent Heart Watch members who advocate for sudden cardiac arrest prevention in youth in their communities through professional work, presentations, and service programs. To date, champions have provided over 749,141 youth heart screenings, placed 7,631 AEDs, and trained over 580,000 in CPR/AED use. This past year, we helped cultivate eight new community prevention programs. Together, these champions fuel our national movement to protect young hearts.

Operation PreventionThe vision of Parent Heart Watch (PHW) is to eliminate preventable deaths and disabilities from sudden cardiac arrest (SCA) in youth by 2030. Parents who have lost a child to SCA or whose child is a SCA survivor or is living with a heart condition are joined by medical and allied health professionals and other passionate advocates to advance life-saving initiatives that drive the national dialogue on SCA prevention, given studies show about 1 in 300 youth has an undetected heart condition that puts them at risk. The lack of national prevention standards much less education around what sudden cardiac arrest is (the leading cause of death on school campuses and the #1 killer of student athletes), and what it's not (a heart attack) has caused the needless loss of tens of thousands of lives. According to the American Heart Association (AHA), as many as 16,000 youth are stricken annually. But the fact is, the AHA didn't start collecting data on SCA in youth until the advent of PHW. AHA Heart Disease & Stroke Statistics Reports dating back to 2006 merely suggest an estimate of out-of-hospital cardiac arrest in youth under 18 as high as 14,500. As our national movement to protect young hearts was founded in 2005 and gained momentum, attention on this misunderstood tragedy triggered research and more accurate reporting coupled with prevention initiatives to change the paradigm of loss. Reports indicate progress, from 16,000 youth stricken in 2009, to 12,500 in 2013, to 9,500 in 2014, to now around 7,000. Given Parent Heart Watch is the only national voice solely dedicated to the prevention of SCA in youth, and we've been driving this dialogue for nearly 16 years, we take pride in this evidence that our passionate commitment to protect young hearts has literally saved lives. Operation Prevention is a dynamic and transformative education program that: Cultivates Champions: We empower parents who have lost a child, parents whose child has survived SCA or is living with a heart condition, passionate prevention advocates, non-profit organizations, professional associations, medical and allied health professionals to create and sustain life-saving community prevention programs.Creates Collaborations: We drive the national dialogue in youth education, sports and medical communities through collaborations that convert passive heart safety protocol into proactive prevention strategies in youth communities. Equips Caregivers: Through our national awareness campaigns Take the Prevention Promise and Call Push Shock, we motivate parents, educators, coaches and other adults engaged with youth to be prepared to protect young hearts and offer free tools and resources. Outreach CampaignTake the Prevention Promise is a national call-to-action campaign that educates communities and equips hundreds of thousands annually with free printed, digital and video sudden cardiac arrest (SCA) prevention tools and resources. Free materials overview SCA warning signs & risk factors, heart screenings for early detection, the Cardiac Chain of Survival, AED facts, proper cardiac risk assessment and more. Our near daily reporting of SCA stories as well as the latest news and resources on best practices and protocol reached more than 11 million and engaged thousands in our cause. Our education-focused website makes SCA prevention tools and resources accessible, with the latest news, blogs, legislation, and research on SCA in youth, plus a directory of youth heart screening programs and CPR/AED training and AED placement programs across the country.

Educational AdvocacyWe educate stakeholders in school, sports and medical communities on the critical need for better sudden cardiac arrest prevention practices and protocol anywhere youth congregate. We forge meaningful partnerships with and make annual presentations to thousands of members of regional and national organizations across the country. As an information storehouse, we track youth lost to sudden cardiac arrest, which was the underpinning of our ability to catalyze the national Sudden Death in the Young Registry. We partner on research studies to affect policy change, and we co-author expert industry articles to illuminate the critical need to establish prevention protocol.

---

---

Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/202130749349300543_public.xml