Organizations Filed Purposes:
TO PROVIDE DIAGNOSTIC CARE AND DISEASE MANAGEMENT BY VOLUNTEER PROFESSIONALS FOR PATIENTS AND THEIR FAMILIES DEALING WITH HUNTINGTON DISEASE AT NO COST TO PATIENTS OR THEIR FAMILIES
DIAGNOSTIC CARE & DISEASE MANAGEMENT (30%)
GENETIC TESTING SERVICE (10%) DNA BANKING SERVICES (5%) BRAIN DONATION SERVICES (5%)
CRISIS INTERVENTION (15%) EDUCATIONAL SERVICES (10%) NEWSLETTER (5%) SUPPORT GROUPS (5%) PATIENT ADVOCACY (15%)
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Clark Boyer | BOARD MEMBER | 1 | $0 |
Paul Good | BOARD MEMBER | 1 | $0 |
Christopher W Wolgamott | BOARD MEMBER | 1 | $0 |
Rosalee Sarachek | BOARD MEMBER | 1 | $0 |
Brenda F Farha | PAST CHAIR | 2 | $0 |
Richard L Anderson | SECRETARY/TREASURER | 2 | $0 |
Cheryl J Bish | BOARD MEMBER | 1 | $0 |
Lewis R Blackwell | CHAIRMAN | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202022109349300727_public.xml