Organizations Filed Purposes:
RAISING AWARENESS OF AND SUPPORT FOR THE SHWACHMAN-DAIMOND SYNDROME DISEASE. THIS IS DONE THROUGH EDUCATIONAL CONFERENCES AND THE PUBLICAITON OF PERIODALCS SUCH AS NEWSLETTERS AND BROUCHURES. RESEARCH GRANTS ARE ALSO AWARDED FOR THE STUDY OF THE SYNDROME.
PROVIDED RESEARCH GRANTS FOR THE STUDY OF THE RARE DISEASE SHWACHMAN-DIAMOND SYNDROME
PUBLISHED NEWSLETTERS,PUBLIC SERVICE ANNOUNCEMENTS AND GAVE FAMILY SUPPORT TO KEEP PUBLIC AWARENESS OF THE DISEASE. CONDUCTED GENERAL OPERATIONS.
SPONSORED AND CONDUCTED VARIOUS EDUCATIONAL CONFERENCES ABOUT SHWACHMAN-DIAMOND SYNDROME
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Michelle Grenell | Director | 5 | $0 |
| Carolina Cordova | Director | 5 | $0 |
| Scott Miller | Director | 5 | $0 |
| Nicole Shen | Director | 5 | $0 |
| Jenni Wachter | Director | 5 | $0 |
| Stephanie Gregoretti | Director | 5 | $0 |
| Savannah Lillywhite | Director | 5 | $0 |
| Bryan Sample | TREASURER | 5 | $0 |
| Pamela Miller | Executive Dir. | 5 | $0 |
| Mary Balint | Secretary | 5 | $0 |
| Christian Del Re | Director | 5 | $0 |
| Joan Mowery | ACTING PRES. | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202042979349300014_public.xml