Organizations Filed Purposes:
THE KENTUCKY HEMOPHILIA FOUNDATION ASSISTS INDIVIDUALS WITH HEMOPHILIA AND SIMILAR BLEEDING DISORDERS THROUGH EDUCATION, ADVOCACY, AND SUPPORT SERVICES AND BY PROMOTING RESEARCH FOR A CURE.
TO PROVIDE EDUCATION AND EMPOWERMENT CONCERNING THE TREATMENT OF BLEEDING DISORDERS FOR A BETTER QUALITY OF LIFE.
INCOME:4,750 COSTS:1,609 ADVOCACY DAY ADVOCACY DAY IS ANNUAL EVENT AT THE STATE CAPITOL TO EDUCATE LEGISLATORS ABOUT THE NEEDS AND CONCERNS OF KENTUCKY'S BLEEDING DISORDERS COMMUNITY AND EMPHASIZE THE NEED FOR PATIENT ASSISTANCE PROGRAMS AND THE IMPORTANCE OF ACCESS TO HEALTH CARE. WE RECEIVED A PROCLAMATION FROM GOVERNOR BESHEAR IN FEBRUARY 2020 IN RECOGNITION OF BLEEDING DISORDERS AWARENESS MONTH.
FAMILY INFORMATION AND SUPPORT DAY (CANCELLED DUE TO PANDEMIC) THE ANNUAL FAMILY DAY AT THE ZOO PROVIDES AN OPPORTUNITY FOR FAMILIES AFFECTED BY BLEEDING DISORDERS TO OBTAIN CUTTING EDGE INFORMATION ABOUT AVAILABLE FACTOR PRODUCTS AND ANCILLARY SERVICES AND HAVE AN OPPORTUNITY TO MEET AND GET ACQUAINTED WITH OTHER FAMILIES FOR SUPPORT.
INCOME:24,706 COSTS:22,088 SUMMER CAMP SUMMER CAMP IS A FIVE-DAY EDUCATIONAL AND RECREATIONAL PROGRAM FOR CHILDREN AND TEENS WITH BLEEDING DISORDERS. THE PHILOSOPHY OF OUR SUMMER CAMP PROGRAM IS TO EMPOWER CAMPERS TO BE HEALTHY AND ACTIVE YOUNGSTERS "JUST LIKE ANY OTHER KIDS" WHILE LEARNING TO MANAGE THEIR BLEEDING DISORDER OR LEARN ABOUT THEIR SIBLING'S BLEEDING DISORDER. THE MISSION OF THE KHF SUMMER CAMP PROGRAM IS TO IMPROVE KNOWLEDGE, ATTITUDES, AND BEHAVIORAL SKILLS OF CHILDREN WITH HEMOPHILIA OR A SIMILAR BLEEDING DISORDER AS WELL AS ACCOMPANYING SIBLINGS WHO DO NOT HAVE A BLEEDING DISORDER FOR DEVELOPING A HEALTHY, RISK-REDUCED LIFESTYLE. THE GOALS OF THE KHF SUMMER CAMP PROGRAM ARE TO: 1. COMBINE LIFE SKILLS EDUCATION WITH OUTDOOR ADVENTURE AND FUN FOR THE DEVELOPMENT OF SELF-ESTEEM, CONFIDENCE, TEAM-BUILDING, AND LEADERSHIP SKILLS THROUGH AGE- AND GENDER-APPROPRIATE ACTIVITIES. 2. PROMOTE PHYSICAL, EMOTIONAL, AND MENTAL WELLNESS. 3. ADVOCATE RISK-REDUCING BEHAVIOR FOR OPTIMAL CHILD DEVELOPMENT AND PREVENTION OF COMPLICATIONS FOR EACH CHILD WITH A BLEEDING DISORDER.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Ursela Kamala | EXECUTIVE DI | 40 | $72,584 |
| Bradley T Woods | SECRETARY | 1 | $0 |
| Laura M Webb | VICE PRESIDE | 1 | $0 |
| Kristin Taylor | BOARD MEMBER | 1 | $0 |
| Travis Price | BOARD MEMBER | 1 | $0 |
| Eric D Marcum | BOARD MEMBER | 1 | $0 |
| Cory W Meadows Jd | PRESIDENT | 1 | $0 |
| Christi Hille | BOARD MEMBER | 1 | $0 |
| Roeland A Hartmans | BOARD MEMBER | 1 | $0 |
| Patrick B Dunegan | BOARD MEMBER | 1 | $0 |
| Brad Comer | TREASURER | 1 | $0 |
| Barbara Bitter | BOARD MEMBER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202111129349301011_public.xml