Organizations Filed Purposes:
FUND RESEARCH AND EXPERIMENTATION EXPENSES TO FIND A CURE FOR THE DEADLY GENETIC DISEASE MUCOPOLYSACCHARIDOSIS, AND ASSIST VICTIMS OF THE DISEASE.
GIFT TO UTSW UNIVERSITY HOSPITAL & CLINIC IN SUPPORT OF STUDIES AIMED AT DEVELOPING A THERAPY SPECIFICALLY EFFECTIVE FOR TREATING SPINAL CORD COMPRESSION AND THE BRAIN IN MPS I PATIENTS.
GIFT TO IOWA STATE UNIVERSITY FOR MPS STUDY.
GIFT TO THE MIAMI FOUNDATION AND UNIVERSITY OF PENNSYLVANIA FOR MPS STUDY.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jerry Pomposelli | VICE PRESIDENT | 1 | $0 |
| Mark Dant | PRESIDENT | 2 | $0 |
| Greg Buchanan | ASSOC. DIRECTOR | 1 | $0 |
| David Verrett | ASSOC. DIRECTOR | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202110259349300611_public.xml