Organizations Filed Purposes:
TO PROMOTE THE PREVENTION OF SPINA BIFIDA, AND TO ENHANCE THE LIVES OF ALL AFFECTED
FINANCIAL ASSISTANCE FUND IS AVAILABLE TO INDIVIDUALS AFFECTED BY SPINA BIFIDA WHEN THERE IS A VITAL NEED AND A FINANCIAL HARDSHIP. THIS FUND HAS HELPED WITH MEDICAL AND THERAPY BILLS, PURCHASES OF DURABLE MEDICAL EQUIPMENT, MODIFICATIONS TO HOMES, WHEELCHAIR LIFTS FOR VEHICLES, AND CYCLES, AND MUCH MORE. THE FUND IS AVAILABLE TO FAMILIES ACROSS KENTUCKY AND SOUTHERN INDIANA. SBAK SEEKS DONATIONS FOR ALL OUR PROGRAMS AND SERVICES. FINANCIAL AID FUND PROVIDED FUNDS TO FAMILIES TO ATTEND TEAL ON THE HILL IN WASHINGTON DC AND THE LOUISVILLE REGIONAL SPINA BIFIDA CONFERENCE
CHILDRENS PROGRAMS ARE OUR MOST SUCCESSFUL BECAUSE FAMILIES FIND SO MUCH VALUE IN MEETING WITH OTHERS WHO ARE EXPERIENCING THE SAME ISSUES, CHALLENGES, AND SUCCESS STORIES. SENT 31 FAMILIES TO A CENTER FOR COURAGEOUS KIDS WEEKEND RETREAT
SBAK OFFERS A VARIETY OF RESOURCES, CLASSES, WEBINARS AND SERVICES TO HELP PARENTS AND INDIIDUALS BE THE BEST ADVOCATES POSSIBLE. A WIDE VARIETY OF TOPICS ARE COVERED IN OUR EDUCATION CLASSES AND AT OUR CONFERENCE. HOSTED THE BI-ANNUAL REGIONAL SPINA BIFIDA ASSN CONFERENCE IN LOUISVILLE
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Erin Gillespie | EXECUTIVE DI | 40 | $42,520 |
| Doug Dressman | EXECUTIVE DI | 40 | $9,232 |
| Lance Williams | BOARD TREASU | 1 | $0 |
| Reese Turner | BOARD MEMBER | 1 | $0 |
| Amy Sugg | CHAIR | 1 | $0 |
| Erin Straub | BOARD MEMBER | 1 | $0 |
| Cindy Pryor | BOARD MEMBER | 1 | $0 |
| Colleen Payne | BOARD MEMBER | 1 | $0 |
| Michelle Gerken | BOARD MEMBER | 1 | $0 |
| Belinda Coyle | BOARD MEMBER | 1 | $0 |
| Beth Bryant | BOARD MEMBER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202012939349301001_public.xml