Organizations Filed Purposes:
THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE.
TO SUPPORT EFFORTS TO CURE VON-HIPPEL-LINDAU DISEASE: TO PROVIDE A SUPPORT NETWORK FOR PATIENTS & THEIR FAMILIES: TO EDUCATE & INFORM THE PUBLIC & THE MEDICAL COMMUNITY ON CURRENT DEVELOPMENTS.
THE VHL ALLIANCE PROVIDES A QUARTERLY NEWSLETTER, ON-LINE SERVICES, TELEPHONE OUTREACH AND OTHER SERVICES FOR VHL PATIENTS & FAMILY MEMBERS TO BE ABLE TO COMMUNICATE CURRENT VHL RESEARCH & MEDICAL INFORMATION. THE VHL ALLIANCE ALSO PROVIDES EDUCATIONAL MATERIAL INCLUDING PATIENT HANDBOOKS AND BROCHURES ON LIVING WITH VHL DISEASE, THE VHL ALLIANCE ALSO HOLDS MEDICAL/RESEARCH SYMPOSIUMS, AN ANNUAL CONFERENCES & RECURRING SEMINARS, AND MAINTAINS EDUCATION & RESEARCH PROGRAMS SUCH AS THE TISSUE BANK AND THE CENTRAL VHL DATABASE.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Kevin Nichols | DIRECTOR | 5 | $0 |
| Stacy Lloyd Mph | DIRECTOR | 5 | $0 |
| Soniya Sapre | DIRECTOR | 5 | $0 |
| Seth Horwitz | TREASURER & DIRECTOR | 5 | $0 |
| Prashant Kudva | DIRECTOR | 5 | $0 |
| Mark Pallansch | DIRECTOR | 5 | $0 |
| Julie Woodruff Jd | DIRECTOR | 5 | $0 |
| Jennifer Galenkamp | DIRECTOR | 5 | $0 |
| Gordon Cooke | DIRECTOR | 5 | $0 |
| Eric Jonasch Md | DIRECTOR | 5 | $0 |
| Emily Billcheck | SECRETARY & DIRECTOR | 5 | $0 |
| Doug Karle | PRESIDENT/BOARD CHAIR | 5 | $0 |
| Connie Rath Ed | DIRECTOR | 5 | $0 |
| Camron King | BOARD VICE CHAIR/DIRECTOR | 5 | $0 |
| Barbara Correll | DIRECTOR | 5 | $0 |
| Anna Waller | DIRECTOR | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033009349300838_public.xml