Organizations Filed Purposes:
THE MISSION OF THE NATIONAL-TAY SACHS & ALLIED DISEASES ASSOCIATION IS TO LEAD THE FIGHT TO TREAT AND CURE TAY-SACHS, CANAVAN AND RELATED GENETIC DISEASES AND TO SUPPORT AFFECTED FAMILIES AND INDIVIDUALS IN LEADING FULLER LIVES.
TO DETECT, PREVENT AND RESEARCH TAY-SACHS AND ALLIED DISEASES. THE ORGANIZATION ALSO PROVIDES SERVICES TO FAMILIES AND CHILDREN THAT ARE LIVING WITH THE DISEASES.
RESEARCH: MAKES GRANTS TO SCIENTISTS THROUGH A REQUEST FOR PROPOSAL PROCESS. THESE GRANTS ARE FOR RESEARCH PROJECTS THAT INVOLVE BASIC RESEARCH, TRANSLATIONAL STUDIES OR CLINICAL STUDIES IN THE AREAS OF NEURODEGENERATIVE DISORDERS AFFECTING THE CENTRAL NERVOUS SYSTEM.
FAMILY SERVICES: COORDINATE PARENT PEER COUNSELING PROGRAMS FOR MORE THAN 420 FAMILIES, REFERRALS AND ADVOCACY SERVICE, CRISIS INTERVENTION, COUNSELING, & CONSULTATION TO HEALTH WORKERS.
EDUCATION: PUBLISH AND DISSEMINATE EDUCATIONAL LITERATURE TO PROFESSIONALS AND LAY PERSONS, RESPOND TO REQUESTS FOR INFORMATION, PARTICIPATE IN CONFERENCES AND PROVIDE PUBLIC SPEAKERS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Susan Kahn | EXECUTIVE DIRECTOR | 40 | $111,848 |
| Carla Steckman | DIRECTOR | 2.5 | $0 |
| Gerry Cox | DIRECTOR | 2.5 | $0 |
| Jamie Ring | DIRECTOR | 2.5 | $0 |
| Michael Richards | TREASURER | 2.5 | $0 |
| Kevin Romer | DIRECTOR | 2.5 | $0 |
| Marion Yanovsky | DIRECTOR | 2.5 | $0 |
| Sophia Pesotchinksy | DIRECTOR | 2.5 | $0 |
| Oralea Marquardt | VICE PRESIDENT | 2.5 | $0 |
| Amy B Katz | DIRECTOR | 2.5 | $0 |
| Meryl Kallish | DIRECTOR | 2.5 | $0 |
| Amy Speak | DIRECTOR | 2.5 | $0 |
| Karen Grinzaid | DIRECTOR | 2.5 | $0 |
| Edna Kaplan | DIRECTOR | 2.5 | $0 |
| Merle Adelman | DIRECTOR | 2.5 | $0 |
| Shari Ungerleider | DIRECTOR | 2.5 | $0 |
| Monica Gettleman | DIRECTOR | 2.5 | $0 |
| Stewart Altman | DIRECTOR | 2.5 | $0 |
| Risa Asnen | DIRECTOR | 2.5 | $0 |
| Brian Manning | DIRECTOR | 2.5 | $0 |
| Ruth Feldman | SECRETARY | 2.5 | $0 |
| Jason Duncan | DIRECTOR | 2.5 | $0 |
| Staci Kallish | PRESIDENT | 2.5 | $0 |
| Blyth Lord | DIRECTOR | 2.5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202140639349301704_public.xml