Organizations Filed Purposes:
TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT.
DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME.
COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS, RESEARCHPARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES AND MEDICAL INFORMATION. INCLUDES COSTS TO DEVELOP MY DOWN SYNDROME COMMUNITY (MYDSC) LAUNCHED IN AUGUST 2020
A FILM PROJECT CALLED FORGET ME NOT ABOUT INCLUSION IN SOCIETY OF PEOPLE LIVING WITH DOWN SYNDROME IN PARTNERSHIP WITH ALANA FOUNDATION.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Hampus Hillerstrom | PRESIDENT AND CEO | 40 | $331,908 |
| Beverly Paperiello | MEMBER | 1 | $0 |
| Kim Warren | MEMBER | 1 | $0 |
| Jennifer Smolka | MEMBER | 1 | $0 |
| Maria Dellapina | MEMBER, EXECUTIVE COMMITTEE | 1 | $0 |
| Sohail Masood | MEMBER | 1 | $0 |
| Claudia Moreira | MEMBER | 1 | $0 |
| Jeff W Strobel | MEMBER | 1 | $0 |
| Christopher Lis | MEMBER | 1 | $0 |
| Anthony Providenti | MEMBER | 1 | $0 |
| Anula Jayasurya | MEMBER | 1 | $0 |
| Hector Guinness | MEMBER | 1 | $0 |
| Tony Hung | BOARD VICE CHAIR | 1 | $0 |
| Paul Murasko | MEMBER, EXECUTIVE COMMITTEE | 1 | $0 |
| Michael J Mannor Phd | BOARD CHAIR | 3 | $0 |
| Patrick Kannan | BOARD MEMBER TREASURER | 1 | $0 |
| Ryan M Hartman | MEMBER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202002539349301155_public.xml