Organizations Filed Purposes:
THE MISSION OF NEUROFIBROMATOSIS, INC., NORTHEAST IS TO RAISE FUNDS TO SUPPORT RESEARCH OF THE CAUSES, CURE AND TREATMENT OF A DISEASE DESCRIBED AS NEUROFIBROMATOSIS, TO PROMOTE AND PROVIDE SUPPORT SERVICES TO PATIENTS AND THEIR FAMILIES, TO SUPPORT CLINICS DEDICATED TO DIAGNOSIS AND TREATMENT AND TO SUPPORT PROGRAMS INTENDED TO INCREASE AWARENESS OF THE DISEASE.
RESEARCH - SUPPORT OF RESEARCH THROUGH MAKING GRANTS FOR STUDY INTO THE CAUSES, CURE AND TREATMENT OF NEUROFIBROMATOSIS
PATIENT AND FAMILY SUPPORT - NEUROFIBROMATOSIS INC., NORTHEAST ACTS AS A RESOURCE FOR PATIENTS WHO ARE LOOKING FOR PHYSICIANS AND SPECIALISTS AT NF CLINICS. THE ORGANIZATION ENCOURAGES VOLUNTEERISM AT OUR EVENTS WHERE NEUROFIBROMATOSIS PATIENTS CAN MEET OTHERS WHO ARE AFFECTED. THE ORGANIZATION ORGANIZES GATHERINGS OF PATIENTS, FAMILIES AND FRIENDS, WHERE THEY ARE PROVIDED RESEARCH, MEDICAL UPDATES AND SCHOLARSHIPS FOR CHILDREN TO ATTEND NEUROFIBROMATOSIS CAMP.
LOBBYING - NEUROFIBROMATOSIS, INC., NORTHEAST LOBBIED CONGRESS FOR INCREASED FUNDING FOR NEUROFIBROMATOSIS RESEARCH AT BOTH THE NATIONAL INSTITUTES OF HEALTH AND THE ARMY'S NEUROFIBROMATOSIS RESEARCH PROGRAM.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Karen Peluso | EXECUTIVE DIRECTOR | 40 | $119,823 |
| Andres Lessing | DIRECTOR | 0 | $0 |
| Alexandra Powers Cellucci | DIRECTOR | 0 | $0 |
| John Thomson | DIRECTOR | 0 | $0 |
| John Shea | DIRECTOR | 0 | $0 |
| Melissa Shea Malerba | DIRECTOR/SECRETARY | 0 | $0 |
| John Manth | DIRECTOR | 0 | $0 |
| Justin Jordan | DIRECTOR | 0 | $0 |
| Robert Ryan | DIRECTOR/TREASURER | 0 | $0 |
| Robert Klouda | DIRECTOR | 0 | $0 |
| Nicole Ullrich Md Phd | DIRECTOR | 0 | $0 |
| Patrick Callahan | DIRECTOR | 0 | $0 |
| Lori Ryan | CHAIRPERSON | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033019349301593_public.xml