Organizations Filed Purposes:
CHARLEY'S FUND'S SINGULAR MISSION IS TO SUPPORT THE DEVELOPMENT OF TREATMENTS AND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY (DMD). WE IDENTIFY AND DIRECT FUNDING TO THE MOST COMPELLING RESEARCH AND TREATMENT PROGRAMS RELATED TO DMD AND, (CONT. ON SCH. O.)
TO ACCELERATE THE DEVELOPMENT OF LIFE-SAVING TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY "DMD"
AS PART OF CHARLEY'S FUND, INC. GENERAL SUPPORT OF THERAPEUTIC DEVELOPMENT, THIS 2019 REVENUE WAS TRIGGERED BY A MILESTONE DETAILED IN A 2016 FUNDING AGREEMENT WITH AKASHI THERAPEUTICS, INC.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Laura Dalle Pazze | PRESIDENT & COO | 55 | $235,206 |
| Tracy Kramer Seckler | CO-FOUNDER & CEO | 40 | $74,160 |
| Mark Avagliano | BOARD MEMBER | 2 | $0 |
| Ellen Wilner | BOARD MEMBER | 2 | $0 |
| Randy Reiff | BOARD MEMBER | 2 | $0 |
| Kathe Kramer Chase | BOARD MEMBER | 2 | $0 |
| Karen Climo | CLERK | 2 | $0 |
| Earl Kramer | TREASURER | 2 | $0 |
| Benjamin Seckler Md | BOARD CHAIRMAN | 15 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202023189349311987_public.xml