EPILEPSY FOUNDATION NEW ENGLAND
650 SUFFOLK STREET NO 405, LOWELL, MA 01854 www.epilepsynewengland.org

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Organizations Filed Purposes: THE MISSION OF EPILEPSY FOUNDATION NEW ENGLAND IS TO STOP SEIZURES AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), FIND A CURE AND OVERCOME THE CHALLENGES OF EPILEPSY THROUGH EDUCATION, ADVOCACY, AND RESEARCH.

TO CURE AND OVERCOME THE CHALLENGES OF EPILEPSY THROUGH EDUCATION, ADVOCACY AND RESEARCH.

YOUTH SERVICES: EFNE PROVIDES 12-15 SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING 300 PARTICIPANTS. OUR YOUNG LEADERS NETWORK ENGAGES 525 TEENS AND YOUNG ADULTS IN SKILL-BUILDING AND SUPPORT THROUGH MONTHLY MEETINGS AND COMMUNITY SERVICE; PARTICIPANTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBERS, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION-AGE YOUTH WITH COMMUNITY BUILDING AND SKILLS AS THEY TRANSITION TO ADULTHOOD FOR 40 PEOPLE PER YEAR. KIDS CONNECT BUILDS COMMUNITY AND PROVIDES RECREATION FOR 265 MIDDLE SCHOOL STUDENTS. ONLINE VIRTUAL SUPPORT GROUPS AND MEET UPS PROVIDE SUPPORT TO OUR YOUTH. IN MARCH-JUNE 2020, DURING THE INITIAL PHASE OF THE PANDEMIC, ONLINE CHILDREN'S GROUPS MET 10 TIMES PER WEEK (2X/WEEKDAY), SERVING 60 CHILDREN, AND YOUNG ADULT GROUPS MET 15 TIMES PER WEEK (3X/WEEKDAY) SERVING 100 YOUTH. OUR HOPE LION CAMPAIGN HAS REACHED 367 FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY BEGIN THEIR JOURNEY WITH EPILEPSY.

RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES HELPDESK SERVICES TO APPROXIMATELY 175 CALLERS PER YEAR. IN FY20, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 47 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 8 SUPPORT GROUPS PER MONTH, SERVING 300-400 PEOPLE PER YEAR. EFNE'S 12-MEMBER VOLUNTEER REMEMBRANCE NETWORK PROVIDES BEREAVEMENT SUPPORT TO FAMILIES WHO LOSE A LOVED ONE TO EPILEPSY. THE FOUNDATION PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS, AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY.

FUNDING SUPPORT & DONATION CENTER: OUR DONATION CENTER FUNDS EPILEPSY FOUNDATION NEW ENGLAND'S MISSION AND SUPPORTS OUR ADVANCEMENT OF RESEARCH IN EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO SHOWCASE ADVANCES AND RAISE MONEY FOR RESEARCH, IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN UNDERSTANDING RESEARCH IN EPILEPSY.

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