EPILEPSY FOUNDATION NEW ENGLAND
650 SUFFOLK STREET NO 405, LOWELL, MA 01854 www.epilepsynewengland.org

Total Revenue
$5,439,977
Total Expenses
$4,917,110
Net Assets
$5,522,444

Organizations Filed Purposes: THE MISSION OF EPILEPSY FOUNDATION NEW ENGLAND IS TO STOP SEIZURES AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), FIND A CURE AND OVERCOME THE CHALLENGES OF EPILEPSY THROUGH EDUCATION, ADVOCACY, AND RESEARCH.

TO CURE AND OVERCOME THE CHALLENGES OF EPILEPSY THROUGH EDUCATION, ADVOCACY AND RESEARCH.

YOUTH SERVICES: EFNE PROVIDES 12-15 SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING 300 PARTICIPANTS. OUR YOUNG LEADERS NETWORK ENGAGES 525 TEENS AND YOUNG ADULTS IN SKILL-BUILDING AND SUPPORT THROUGH MONTHLY MEETINGS AND COMMUNITY SERVICE; PARTICIPANTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBERS, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION-AGE YOUTH WITH COMMUNITY BUILDING AND SKILLS AS THEY TRANSITION TO ADULTHOOD FOR 40 PEOPLE PER YEAR. KIDS CONNECT BUILDS COMMUNITY AND PROVIDES RECREATION FOR 265 MIDDLE SCHOOL STUDENTS. ONLINE VIRTUAL SUPPORT GROUPS AND MEET UPS PROVIDE SUPPORT TO OUR YOUTH. IN MARCH-JUNE 2020, DURING THE INITIAL PHASE OF THE PANDEMIC, ONLINE CHILDREN'S GROUPS MET 10 TIMES PER WEEK (2X/WEEKDAY), SERVING 60 CHILDREN, AND YOUNG ADULT GROUPS MET 15 TIMES PER WEEK (3X/WEEKDAY) SERVING 100 YOUTH. OUR HOPE LION CAMPAIGN HAS REACHED 367 FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY BEGIN THEIR JOURNEY WITH EPILEPSY.

RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES HELPDESK SERVICES TO APPROXIMATELY 175 CALLERS PER YEAR. IN FY20, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 47 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 8 SUPPORT GROUPS PER MONTH, SERVING 300-400 PEOPLE PER YEAR. EFNE'S 12-MEMBER VOLUNTEER REMEMBRANCE NETWORK PROVIDES BEREAVEMENT SUPPORT TO FAMILIES WHO LOSE A LOVED ONE TO EPILEPSY. THE FOUNDATION PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS, AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY.

FUNDING SUPPORT & DONATION CENTER: OUR DONATION CENTER FUNDS EPILEPSY FOUNDATION NEW ENGLAND'S MISSION AND SUPPORTS OUR ADVANCEMENT OF RESEARCH IN EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO SHOWCASE ADVANCES AND RAISE MONEY FOR RESEARCH, IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN UNDERSTANDING RESEARCH IN EPILEPSY.

Executives Listed on Filing

Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing

NameTitleHours Per WeekTotal Salary
Brad RichPRESIDENT50$217,767
Susan LinnPRESIDENT/CEO50$198,967
Kiran ReddyDIRECTOR (UNTIL MARCH 2020)0.4$0
Richard McilveenDIRECTOR (UNTIL DEC 2019)0.4$0
Audrey KadisDIRECTOR (UNTIL OCT 2019)0.4$0
Francis KenneallyDIRECTOR0.4$0
Christine ChasseDIRECTOR0.4$0
Tim YoungDIRECTOR0.4$0
Cheryl WilsonDIRECTOR0.4$0
Steve ValliereDIRECTOR0.4$0
Kimberlee SchumacherDIRECTOR0.4$0
Samantha SchmidtDIRECTOR0.4$0
Francesco SalituroDIRECTOR0.4$0
Tamara SacharczykDIRECTOR0.4$0
Catherine MccartyDIRECTOR0.4$0
Susan KantorDIRECTOR0.4$0
Don HolmesDIRECTOR0.4$0
Tim HigginsDIRECTOR0.4$0
Zach HermesDIRECTOR0.4$0
Phil HaydonDIRECTOR0.4$0
John GaitanisDIRECTOR0.4$0
Brett DowningDIRECTOR0.4$0
Nicole DerosiersDIRECTOR0.4$0
Jennifer CardilloDIRECTOR0.4$0
Edward BunnDIRECTOR0.4$0
Jason BourqueDIRECTOR0.4$0
Andrea AndersonDIRECTOR0.4$0
Joe SiravoSECRETARY1.5$0
Steve SiravoTREASURER1.5$0
Alison ZetterquistVICE CHAIR1.5$0
Andrew ColeCHAIR0.4$0

Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/202033089349302718_public.xml