Organizations Filed Purposes:
TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION
ALDC SPONSORS AN ANNUAL MEDICAL CONFERENCE, MAINTAINS A WEBSITE WITH EDUCATIONAL CONTENT, PRODUCES FREE WEBINARS, HOSTS SUPPORT CALLS FOR VARIOUS PATIENT GROUPS, AND RAISES AWARENESS. ALDC ALSO HOSTS A PATIENT PORTAL AND COLLECTS PATIENT HEALTH DATA. ALDC WORKS WITH ITS INDUSTRY ADVISORY COUNCIL TO BRING INDUSTRY REPRESENTATIVES TOGETHER TO ENCOURAGE THEIR WORK IN THE ALD/AMN FIELD.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Kelly Miettunen | EXECUTIVE DIRECTOR | 10 | $13,520 |
| Keith Van Haren Md | DIRECTOR | 2 | $0 |
| Alex Sherman | DIRECTOR | 2 | $0 |
| Amber Salzman Phd | DIRECTOR | 2 | $0 |
| Timothy Maguire | DIRECTOR | 2 | $0 |
| Troy Lund Phd Md | DIRECTOR | 2 | $0 |
| Benjamin Lenail | DIRECTOR | 2 | $0 |
| Stephan Kemp Phd | DIRECTOR | 5 | $0 |
| S Ali Fatemi Md | DIRECTOR | 5 | $0 |
| Jennifer Farmer | DIRECTOR | 2 | $0 |
| Josh Bonkowsky Md Phd | DIRECTOR | 4 | $0 |
| Gregory Benton | DIRECTOR | 2 | $0 |
| Patricia Chapman | CLERK | 5 | $0 |
| Kathleen M O'Sullivan-Fortin Esq | TREASURER | 30 | $0 |
| Florian Eichler Md | PRESIDENT | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013149349301211_public.xml