Organizations Filed Purposes:
Drive evidence-based research and information distribution that will enable ASXL-impacted children to have an improved quality of life.
ASXL Registry & Biobank These are foundational tools based on patient data & samples, which researchers will utilize to study and increase our knowledge of these syndromes.
Research Grants Effective research will bring an understanding of the underlying mechanisms and potential treatments for ASXL syndromes.
Conferences These meetings bring together professionals and families to share information and exchange ideas that will move our mission forward.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jeanette Troiola | Director | 2 | $0 |
| Melissa Farmer Richards | Director | 2 | $0 |
| Dr Wen-Hann Tan | Director | 2 | $0 |
| Dr Bianca Russell | Director | 2 | $0 |
| Laura Badmaev | President | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202023249349300112_public.xml