Organizations Filed Purposes:
To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alstrom Syndrome.
Education: ASI produces The Alstrom Syndrome Handbook that covers all topics relative to patients, families, physicians, and research scientists with an interest in Alstrom Syndrome. The Handbook was distributed to 240 families and more than 300 physicians, research scientists, and other professionals.Research: ASI supports research genotyping patient DNA samples for phenotype correlations; collecting patient medical records for a database of clinical data; and expanding an improved clinical/medical records database.Family Support: ASI supports travel to the Greater Baltimore Medical Center clinics, provides Braille equipment, hearing aids and other medical assistive devices for patients in 3rd world countries, hosts the ASI website and social media outlets, and sends "Family Packets" to newly diagnosed families. ASI conferences, held every three years, are of enormous importance to the families.ASI created and organizes the first multidisciplinary clinic for Alstrom Syndrom at the Greater Baltimore Medical Center.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
|Name||Title||Hours Per Week||Total Salary|
|Robert P Marshall||Executive Dir.||45||$98,382|
|Barbara Strubell||Vice President||0.1||$16,385|
|Edward Conlon Jd||Director||0.1||$0|
|Clarissa Bronson Jd||Director||0.1||$0|
|Michael J Kirby||Clerk||0.1||$0|
|Pietro Maffei Md||Director||0.1||$0|
|Clair Francomano Md||Director||0.1||$0|
Data for this page was sourced from XML published by IRS (public 990 form dataset
) from: https://s3.amazonaws.com/irs-form-990/202041329349301984_public.xml