Total Revenue
Total Expenses
Net Assets

Organizations Filed Purposes: To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alstrom Syndrome.

Education: ASI produces The Alstrom Syndrome Handbook that covers all topics relative to patients, families, physicians, and research scientists with an interest in Alstrom Syndrome. The Handbook was distributed to 240 families and more than 300 physicians, research scientists, and other professionals.Research: ASI supports research genotyping patient DNA samples for phenotype correlations; collecting patient medical records for a database of clinical data; and expanding an improved clinical/medical records database.Family Support: ASI supports travel to the Greater Baltimore Medical Center clinics, provides Braille equipment, hearing aids and other medical assistive devices for patients in 3rd world countries, hosts the ASI website and social media outlets, and sends "Family Packets" to newly diagnosed families. ASI conferences, held every three years, are of enormous importance to the families.ASI created and organizes the first multidisciplinary clinic for Alstrom Syndrom at the Greater Baltimore Medical Center.

Executives Listed on Filing

Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing

NameTitleHours Per WeekTotal Salary
Robert P MarshallExecutive Dir.45$98,382
Barbara StrubellVice President0.1$16,385
Melanie VandornTreasurer0.1$0
Cassie JohnstonDirector0.1$0
Edward Conlon JdDirector0.1$0
Selma DuzleniDirector0.1$0
Pamela JacksonDirector0.1$0
Clarissa Bronson JdDirector0.1$0
Jeffrey SmithDirector0.1$0
Mary SmartDirector0.1$0
Michael J KirbyClerk0.1$0
Pietro Maffei MdDirector0.1$0
Clair Francomano MdDirector0.1$0
Michelle MarshallDirector0.1$0
Chelsey KostickDirector0.1$0
Randall DouglasDirector0.1$0
Gina DenbowDirector0.1$0

Data for this page was sourced from XML published by IRS (public 990 form dataset) from: