Organizations Filed Purposes:
TO RAISE AWARENESS FOR AND ADVOCATE ON BEHALF OF PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES PROVIDE EDUCATION AND SUPPORTIVE SERVICES AND PROMOTE ONGOING RESEARCH TO IMPROVE THE QUALITY OF LIFE FOR THOSE AFFECTED.
Par for the Clot Charity Golf Tournament Fund This charity event is an annual fundraiser to help support the Chapters overall programs and services. The revenue raised are used to support the educational programs and services, advocacy initiatives, and national research support we provide to the Bleeding Disorders community. The charity event also serves as an awareness campaign for bleeding disorders and the affects a diagnosis has individuals and their families. We had 150 participants with volunteers and community members in participation.
HSC Annual State Meeting and Educational Conference Day: Each year we provide our members an annual state-wide meeting. We report on the years financials and accomplishments. Board of Directors are recognized and awards to our community members are provided. In addition, the HELLO Conference, Helping Embrace Life Learning Opportunities provides presentations and educational programs to support all areas of living well with bleeding disorders so those affected can reach their highest potentials without boundaries. This is a two-day event open to all members of the bleeding disorders community in South Carolina, healthcare providers and associations. The attendance this year was over 275, locally and nationally as we provided this event virtually due to COVID-19. We include a Friday evening dinner opening event with HSCs mission moments, awards, and a key note presentation. Educational presentations and breakouts are available on Saturday. Childcare was not provided this year but programs for kids were available virtually to include programs for children, youth, and teens. The event concluded after dinner on Saturday. On Saturday, virtual exhibiting was provided for participants to interface one-to-one with participating home care and manufacturing companies and their representatives to explore new treatment therapies.
HSC Advocacy/Legislative Days in Columbia:This event had an attendance this year of close to 75 individuals which include Hemophilia of South Carolina members affected by bleeding disorders, healthcare providers who assist our community members with services and treatment, local and national organization with interest in assuring access to quality care and treatment, the states Department of Environmental Control; Children with Special Health Care Needs and Industry partners. The Chapter provides informational support to community members in regards to advocacy awareness and training, education on health care access initiatives the chapter is working on, and addresses any concerns, while educating our elected officials on bleeding disorders. We provided awareness support and materials to government and state agencies to help promote a greater understanding of the challenges faced by people with bleeding disorders
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Suzanne Martin | Executive Dir. | 40 | $57,110 |
| Felicia Alexander | Secretary | 10 | $0 |
| Michael Walden | President | 10 | $0 |
| Patricia Tucker | Treasurer | 10 | $0 |
| Crystal Day | Director | 0 | $0 |
| Robert Butler | Director | 0 | $0 |
| Eric Dunton | Director | 0 | $0 |
| Aaron Smith | Director | 0 | $0 |
| Wendy Legrand | Director | 0 | $0 |
| Shelley Crisp | Vice President | 0 | $0 |
| Renita Hickman Johnson | Director | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202100989349301910_public.xml