Organizations Filed Purposes:
THE FOUNDATION IS AN EDUCATION AND RESEARCH ORGANIZATION WHOSE PURPOSE IS TO ADDRESS THE NEEDS OF PEOPLE LIVING WITH FUNCTIONAL GASTROINTESTINAL OR MOTILITY DISORDERS.
RESEARCH AND EDUCATION OF GASTROINTESTINAL DISORDERS
EDUCATION: THE FOUNDATION PUBLISHES AN ENEWSLETTER, "DIGESTIVE HEALTH MONTHLY" THAT COVERS DIFFERENT AREAS OF GASTROINTESTINAL HEALTH IN ADULTS AND CHILDREN WITH UP-TO-DATE INFORMATION ON RECOGNIZING, DIAGNOSING, TREATING, AND LIVING WITH CHRONIC GASTROINTESTINAL ILLNESS. THE INFORMATION IS RELIABLE AND UNDERSTANDABLE BY LAY READERS, WHILE BEING AUTHORITATIVE FOR MEDICAL PROFESSIONALS. IFFGD CURRENTLY MAINTAINS EIGHT SEPARATE WEB SITES: WWW.IFFGD.ORG; WWW.ABOUTCONSTIPATION.ORG; WWW.ABOUTGIMOTILITY.ORG; WWW.ABOUTIBS.ORG; WWW.ABOUTGASTROPARESIS.ORG; WWW.ABOUTGERD.ORG; WWW.ABOUTINCONTINENCE.ORG; AND WWW.ABOUTKIDSGI.ORG WHICH PROVIDE COMPREHENSIVE HEALTH INFORMATION FREE OF CHARGE. THESE WEB SITES CONTAIN OVER 250 ARTICLES WITH INFORMATION ON A RANGE OF TOPICS TO HELP INDIVIDUALS OR THE FAMILIES OF THOSE AFFECTED BY GI DISORDERS. MOST OF THE ARTICLES ARE WRITTEN BY LEADING INTERNATIONAL EXPERTS IN THE FIELD OF GI HEALTH AND RESEARCH. TO ENCOURAGE WIDE DISSEMINATION, ARTICLES ARE DISTRIBUTED EITHER FREE OF CHARGE. TOGETHER, THESE WEB SITES CURRENTLY AVERAGE AROUND 800,000 PAGE VIEWS PER MONTH. IFFGD MAINTAINS AN ONLINE FORUM TO GIVE PEOPLE AFFECTED BY ALL CHRONIC DIGESTIVE DISORDERS A SAFE AND SUPPORTIVE PLACE TO DISCUSS ISSUES SURROUNDING THESE SENSITIVE TOPICS. BY OPENLY SHARING THEIR EXPERIENCES OF LIVING WITH A CHRONIC DIGESTIVE DISORDER, PATIENTS AND FAMILY MEMBERS CAN LEARN FROM OTHERS IN THE DIGESTIVE HEALTH COMMUNITY AND, IN TURN, ARE GIVEN THE OPPORTUNITY TO ENCOURAGE AND SUPPORT THOSE WHO MAY BE SUFFERING.IN 2019, IFFGD LAUNCHED A NEW PROJECT, RESEARCH ON THE ROAD, A SERIES OF VIDEO INTERVIEWS ON KEY TOPICS RELEVANT TO THE GASTROINTESTINAL ILLNESS COMMUNITY. WORKING WITH RESEARCHERS AND CLINICIANS FROM AROUND THE WORLD, THIS PROGRAM AIMS TO PROMOTE AWARENESS AND EDUCATION ON TOPICS OF INTEREST TO THE DIGESTIVE HEALTH COMMUNITY THROUGH VIDEO-BASED LEARNING. THESE VIDEOS ARE USED IN CONJUNCTION WITH AWARENESS EVENTS AS WELL AS THROUGHOUT THE YEAR AS THEY ARE RELEVANT TO CURRENT EVENTS.THE FOUNDATION HAS A PATIENT ADVISORY COMMITTEE AND PATIENT PANEL, WHICH CONTINUE TO WORK WITH FOUNDATION LEADERSHIP TO GIVE FEEDBACK AND GUIDANCE IN ALL EDUCATIONAL PROGRAMS. MEMBERS OF THE BOTH THE PATIENT ADVISORY COMMITTEE AND PATIENT PANEL REPRESENT A DIVERSE RANGE OF AGES, GEOGRAPHIES, DIAGNOSES, AND ILLNESS EXPERIENCES. THE PATIENT PANEL IS CURRENTLY COMPRISED OF OVER 500 PATIENTS, FAMILY MEMBERS, AND CAREGIVERS INTERESTED IN HELPING TO GUIDE THE PROGRAMS AND ACTIVITIES OF IFFGD.RESEARCH AND AWARENESS: IN 2019, IFFGD BEGAN WORKING ON A RE-LAUNCH OF A 2002 ITS "IBS IN THE REAL-WORLD SURVEY" OF 350 ADULTS WITH A DIAGNOSIS OF IBS. THIS SURVEY LOOKED AT THE SYMPTOMS, TREATMENT, SIDE EFFECTS, AND OVERALL IMPACT THE DISEASE HAS ON THE LIVES OF THOSE AFFECTED. THE RE-LAUNCH IS EXPECTED TO BE COMPLETED TO COINCIDE WITH IBS AWARENESS MONTH IN APRIL OF 2020. THE FOUNDATION AWARDED 4 "IFFGD RESEARCH AWARDS" IN THE FIELD OF GASTROENTEROLOGY, WITH 34 AWARDS BEING GRANTED HISTORICALLY. THE AWARDS ARE INTENDED TO ENCOURAGE THE PARTICIPATION OF CLINICIANS AND SCIENTISTS IN MULTIDISCIPLINARY EFFORTS AIMED AT ADVANCING THE UNDERSTANDING OF GASTROINTESTINAL DISORDERS IN ADULTS AND IN CHILDREN, TO IMPROVE DIAGNOSIS AND TREATMENT. AS "AWARENESS" DAYS AND WEEKS ARE OBSERVED ON THE U.S. NATIONAL HEALTH OBSERVANCES CALENDAR, THE FOUNDATION RECOGNIZES AND MAKES SPECIAL EFFORTS THROUGH ITS PUBLICATIONS, WEB SITES, AND THROUGH THE PRODUCTION AND DISTRIBUTION OF PUBLIC SERVICE ANNOUNCEMENTS THAT ARE DISTRIBUTED THROUGH PRINT, RADIO, TELEVISION, AND THE INTERNET TO FOCUS ATTENTION ON THE IMPORTANT HEALTH ISSUES BEING RAISED. SOME OF THESE INCLUDE, BUT ARE NOT LIMITED TO: IBS AWARENESS MONTH (APRIL), GERD AWARENESS WEEK (NOVEMBER), GASTROPARESIS AWARENESS MONTH (AUGUST). THE FOUNDATION CONTINUALLY PROVIDES HEALTH MESSAGES TO THE GENERAL PUBLIC ABOUT GI DISORDERS AND INCONTINENCE IN A RANGE OF DIVERSE MEDIA OUTLETS ONLINE OR IN PRINT, INCLUDING, BUT NOT LIMITED TO: WEBMD, REALAGE, LIVESTRONG, HEALTH DAY NEWS, EXCEPTIONAL PARENT MAGAZINE, MODERN MEDICINE, MEDICAL NEWS TODAY, ENDONURSE, GASTROENTEROLOGY & ENDOSCOPY NEWS, GOOD HOUSEKEEPING, REDBOOK, PARADE, SELF,PREVENTION MAGAZINE, US NEWS & WORLD REPORT, COSMOPOLITAN, THE WASHINGTON POST, LA TIMES, NEW YORK TIMES, WALL STREET JOURNAL, AND THE DAILY YOMIURI (TOKYO), CBS THIS MORNING/EARLY MORNING SHOW, THE TODAY SHOW, FOX NEWS, CNN HEADLINE NEWS, AND NATIONAL PUBLIC RADIO'S "LIVING WITHOUT LIMITS".
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Ceciel T Rooker | PRESIDENT | 40 | $135,000 |
| Emeran Mayer Md | DIRECTOR | 0.25 | $0 |
| Jeannette Tries Phd | DIRECTOR | 0.25 | $0 |
| Richard Nelson Md | DIRECTOR | 0.25 | $0 |
| Douglas Drossman Md | DIRECTOR | 0.25 | $0 |
| Eleanor Cautley | DIRECTOR | 0.25 | $0 |
| Nancy J Norton | DIRECTOR | 0.25 | $0 |
| William F Norton | DIRECTOR | 0.25 | $0 |
| Michael J Cohen | BOARD CHAIRMAN | 1 | $0 |
| Dianne Bach | SECRETARY/TREASURER | 1 | $0 |
| Nancy Hartman | VICE PRESIDENT | 0.25 | $0 |
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public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202011819349300616_public.xml