Organizations Filed Purposes:
TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.
TO ACCELERATE THE DISCOVERY AND DEVELOPMENT OF MEDICINES TO PREVENT, TREAT AND CURE JUVENILE BATTEN DISEASE. THIS IS DONE THROUGH GRANTING FUNDS AND CONTRACTING SERVICES WITH ACADEMIC INSTITUTIONS, BIOTECHNOLOGY COMPANIES, AND OTHER ORGANIZATIONS WITH THE CAPACITY TO ASSIST IN ACHIEVING OUR GOALS. THE FOUNDATION ALSO SPEARHEADS THE DEVELOPMENT OF THINK-TANK CONFERENCES AND UNIQUE PARTNERSHIPS TO DRIVE JUVENILE BATTEN DISEASE RESEARCH.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Mary Beth Kiser | PRESIDENT/CEO AND SECRETARY | 40 | $157,753 |
| Danielle Kerkovich | SCIENTIFIC OFFICER | 40 | $131,959 |
| Caroline Goodner | DIRECTOR | 4 | $0 |
| Will Murphy | DIRECTOR | 4 | $0 |
| Wayne Herndon | DIRECTOR | 4 | $0 |
| Sabrina Brown | DIRECTOR | 4 | $0 |
| Jeff Hunt | DIRECTOR | 4 | $0 |
| T Craig Benson | BOARD CHAIR | 20 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202110719349300416_public.xml