RESTLESS LEGS SYNDROME FOUNDATION
3006 BEE CAVE RD NO D-206, AUSTIN, TX 78746 www.rls.org

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Organizations Filed Purposes: THE RESTLESS LEGS SYNDROME FOUNDATION IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO: PROVIDING AND ENHANCING EDUCATIONAL MATERIALS ABOUT RESTLESS LEGS SYNDROME ("RLS") TO PATIENTS, PHYSICIANS, AND OTHER ALLIED HEALTHCARE PROVIDERS; ASSISTING PATIENTS BY IDENTIFYING RLS-RELATED RESOURCES AVAILABLE TO THEM AT THE LOCAL AND NATIONAL LEVEL; AND SUPPORTING MEDICAL RESEARCH INTO THE CAUSATION OF RLS AND POSSIBLE TREATMENTS OR CURES.

RLS: RAISE AWARENESS, EDUCATE, IDENTIFY BETTER TREATMENTS & SUPPORT RESEARCH INTO CAUSES & CURES.

EDUCATIONAL. PROVIDING TRUSTED, UNBIASED INFORMATION ABOUT RESTLESS LEG SYNDROME [ALSO KNOWN AS WILLIS-EKBOM DISEASE] TO INDIVIDUALS AND HEALTHCARE PROVIDERS THROUGH PUBLICATIONS, WEBINARS, A WEBSITE, SOCIAL MEDIA SITES, AND DIRECT COMMUNICATIONS. PUBLICATIONS INCLUDE: A GENERAL INFORMATIONAL BROCHURE ON RLS; A PEDIATRIC RLS GUIDE FOR TEENS, TWENTY-FOUR DIFFERENT HANDOUTS ON RLS SPECIFIC TOPICS DIRECTED TOWARDS PATIENTS; A QUARTERLY MAGAZINE; MONTHLY E-NEWSLETTERS; TEN SPECIALTY BROCHURES DIRECTED TO HEALTHCARE PROVIDERS; AND A MEDICAL BULLETIN ISSUED AS DEVELOPMENTS MERIT. DURING THIS FISCAL YEAR, THIRTEEN WEBINARS ON RLS-RELATED TOPICS WERE OFFERED TO THE PUBLIC. OVER 5,639 PARTICIPANTS VIEWED THESE WEBINARS. THE 12-PART EDUCATIONAL PHYSICIAN WEBINAR SERIES WAS OPEN TO PHYSICIANS, NURSE PRACTITIONERS AND PHYSICIAN ASSISTANTS TO ENHANCE CLINICAL KNOWLEDGE REGARDING DIAGNOSIS, TREATMENT AND MANAGEMENT OF RLS PATIENTS. THIS WEBINAR SERIES IS AVAILABLE ON DEMAND. THE ORGANIZATION'S WEBSITE [WWW.RLS.ORG] ATTRACTS OVER 95,000 ONLINE VISITORS THAT GENERATE OVER 141,700 PAGE VIEWS EACH YEAR. THE RLS FACEBOOK PAGE HAS 12,850 SUPPORTERS AND PARTICIPANTS. THE RLSF BLOG RECEIVES OVER 283,000 PAGE VIEWS. THE RLS FOUNDATION YOUTUBE CHANNEL HAS RECEIVED OVER 99,400 VIEWS. THE FOUNDATION'S GUIDES AND FOCUSES AN ADVOCACY PROGRAM WITH OUTREACH IN THREE SPECIFIC AREAS: AWARENESS AND EDUCATION, MEDICAL RESEARCH AND APPROPRIATE TREATMENT ACCESS.

MEMBERSHIP. THE RLS FOUNDATION SERVES AS A SUPPORT STRUCTURE FOR OVER 16,000 INDIVIDUALS WHO, ON AN ANNUAL BASIS, SEEK INFORMATION ON RLS, EITHER AS ONE WHO SUFFERS FROM THE DISEASE OR AS ONE WHO HAS A FRIEND OR LOVED ONE WHO SUFFERS FROM THE DISEASE. OVER 5,500 INDIVIDUALS HAVE JOINED RLS FOUNDATION AND TAKE ADVANTAGE OF THE CLEARINGHOUSE OF SERVICES THAT PROVIDE INFORMATION ON LATEST DEVELOPMENTS IN TREATMENT, COUNSELING AND CONVERSATION WITH OTHERS WHO SHARE THE AFFLICTION. OVER 130 MEDICAL PROFESSIONALS SPECIALIZING IN THE TREATMENT OF RLS ARE MEMBERS OF THE HEALTHCARE PROVIDER DIRECTORY. MEMBER BENEFITS INCLUDE ACCESS TO A PROPRIETARY DATABASE OF EDUCATIONAL MATERIALS INCLUDING A MEDICAL BULLETIN FOR HEALTHCARE PROVIDERS, A QUARTERLY NEWS MAGAZINE, A MONTHLY E-NEWSLETTER, A MEDICAL-ALERT CARD AND ACCESS THE MEMBERS-ONLY SECTION OF THE RLS WEBSITE. THE MEMBER WEBSITE PROVIDES VISITORS WITH INFORMATION ABOUT RLS, TREATMENT GUIDELINES, RESEARCH ADVANCEMENTS, ADVOCACY OUTREACH, DISCUSSION PANELS AND LINKS TO RLS FOUNDATION SOCIAL MEDIA SITES.

RESEARCH. THE RLSF SUPPORTS AND FUNDS RLS RELATED RESEARCH PROJECTS. DURING THE CURRENT FISCAL YEAR, TWO GRANTS WERE MADE TO RESEARCHERS STUDYING: HOW OPIOID MEDICATIONS WORK IN THE BRAIN TO RELIEVE RLS SYMPTOMS AND A MULTI-CENTER LONGITUDINAL PILOT OBSERVATIONAL STUDY OF THE EFFICACY AND TOLERABILITY OF LONG-TERM TREATMENT OF RLS USING OPIOIDS.

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