Organizations Filed Purposes:
To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research.
To provide support for persons affected by Syringomyelia and Chiari Malformation while raising funds to conduct research for a cure.
ASAP works toward accomplishing its mission by providing Support and Education, Increasing awareness, early identification of patients and understanding of symptoms, cause and management of the disorders. We accomplish this through newsletters, website, annual medical conference, support group meetings, and webinars.
ASAP works toward accomplishing its mission by funding research. ASAPs goals include increasing public awareness of the existence of the disorder and its devastating effects financially supporting research efforts and raising funds to find all causes, to develop new treatments and to improve existing treatments coordinating the efforts of organizations working towards improving the lives of people with Syringomyelia and/or Chiari
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Patrice Schaublin | Executive Director | 35 | $36,488 |
| Molly Lichtenstein | director | 5 | $0 |
| Ian Heger Md | director | 1 | $0 |
| John Caemmerer | director | 1 | $0 |
| Bridget Borys Maher | director | 1 | $0 |
| Paolo Bolognese Md | director | 1 | $0 |
| Richard Simon | Secretary | 1 | $0 |
| Annie Chapman | Treasurer | 2 | $0 |
| Cathy Tufts | Vice President | 2 | $0 |
| Robert Keating Md | Medical advisory chair | 1 | $0 |
| Gerald Grant Md | Research chair | 1 | $0 |
| Eric Berning | President | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202140749349301664_public.xml