Organizations Filed Purposes:
TO SERVE, EDUCATE AND FUND RESEARCH FOR FAMILIES COPING WITH THE EFFECTS OF SYNGAP1-RELATED INTELLECTUAL DISABILITY, A NEUROLOGICAL DISORDER EVIDENT IN EARLY CHILDHOOD.
SYNGAP1 (MRD5) NATURAL HISTORY STUDY REGISTRY: TO CONDUCT A PROSPECTIVELY- PLANNED AND EFFICIENT NATURAL STUDY HISTORY THAT WILL RESULT IN THE MOST COMPREHENSIVE UNDERSTANDING OF THE DISEASE AND ITS COURSE AND PACE OVER TIME.
SYNGAP1 FAMILY MEET-UPS: TO EMPOWER THE PATIENT GROUP'S ROLE IN DRIVING RESEARCH.
SYNGAP1 AWARENESS: TO USE RESOURCES WE RECEIVE TO NETWORK WITH PATIENT FAMILIES AND TO ENGAGE THE HEALTH AND REGULATORY INDUSTRIES, AS WELL AS OTHER PATIENT ORGANIZATIONS, TO BROADEN THE KNOWLEDGE OF SYNGAP1 SYNDROME.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Monica Weldon | PRESIDENT | 40 | $12,000 |
| Candice Taylor | TREASURER | 5 | $0 |
| Leslie Ruthven | DIRECTOR AT | 2 | $0 |
| Christian Rubio | DIRECTOR AT | 0 | $0 |
| Jaime Robertson | DIRECTOR AT | 2 | $0 |
| Nicole Merriam | TREASURER | 0 | $0 |
| Candace Lerman | DIRECTOR AT | 0 | $0 |
| Katy Kennedy | SECRETARY | 2 | $0 |
| Jojo Debord | DIRECTOR AT | 0 | $0 |
| Chuck Bergamo | CHAIRPERSON | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033309349300038_public.xml