Organizations Filed Purposes:
For research and awareness of rare deseases
Research grant for Biobank Registry to Boston Childrens Hospital
Fundraising; Pirouline helps support this fundraiser; this cover expenses with Gala.
NORD (National Organization for Rare Disorders) OMS Patient Registry. Expenses to cover registry of patients
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Hank Holly | Secretary | 2 | $0 |
| Bill Bradley | Treasurer | 2 | $0 |
| Mike C Michaelis | President | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202041639349301404_public.xml