Organizations Filed Purposes:
Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.
Support Alstoms International, promote genetic and medical research, increase awareness of the rare disease and to provide family support for those affected
We foster community engagement to create awareness and provide affected families with support. This includes development of Milestones Special Needs Park, hosting special needs accomodated activities, celebrations, and events.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Melisa Dudley | DIRECTOR | 20 | $0 |
| Javier Martinez | DIRECTOR | 3 | $0 |
| Kelly Smith | DIRECTOR | 1 | $0 |
| Greg Johnston | DIRECTOR | 1 | $0 |
| Gina Flores | DIRECTOR | 1 | $0 |
| Julie Childs | DIRECTOR | 1 | $0 |
| Carrie Broadus | DIRECTOR | 1 | $0 |
| Amy Najjar | SECRETARY | 2 | $0 |
| Lynn Johnston | TREASURER | 2 | $0 |
| Meggan Wilkes | DIRECTOR | 1 | $0 |
| Cassie Johnston | PRESIDENT | 30 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033219349315398_public.xml