Organizations Filed Purposes:
The AHA is dedicated to enhancing the quality of life for those living with chronic bleeding disorders while advocating for a cure.
Community Education - promote community awareness through various conferences and other media:1. North American Camping Conference for Hemophilia Organizations - Annual conference for 200 national and international attendees to promote and enhance the summer camp experience of childern with bleeding disorders.2. Annual Statewide Educational Symposium - brings together those with bleeding disorders and their families from across the state to provide education to help them better manage this chronic condition.3. Infusion Clinic - teaching how to self-infuse medication in partnership with Hemophilia Treatment Center.4. Lunch on the Lawn - Advocacy event to raise awareness with our legislators about the needs of the bleeding disorder community.5. Future Leaders Program - AHA provides training and education throughout the year to teach teens about civics, health insurance, advocacy, interviewing, and career planning.
Health Center - Adult health center established to provide primary care and bleeding disorders care to treat the whole person. It is open to those with bleeding disorders and their adult family members. AHA purchased a building and renovated it for the health center.
Community Support Programs - provide education and support group meetings including:1. Quarterly meetings for the community as a whole that include education, pharmaceutical information, and time for interaction.2. Educational meetings that included: a. Surgical options for individuals with joints affected by bleeding. b. Understanding insurance and options available to our community. c. How to interact with legislators to promote insurance reform. d. Nutrition and exercise - how to improve quality of life. e. Budgeting - both as a group and individually. f. Educational meetings for spanish-speaking community. g. On-going program for at-risk youth.3. Summer camp for 125 children and siblings affected by bleeding disorders.The estimated value of services provided by doctors, nurses, and social workers at the summer camp of $18,200 is not reflected in program expenses.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Cristina Barnes | Executive Dir. | 40 | $68,769 |
| Michael O'Connor | Secretary | 2 | $0 |
| Al Schmeiser | President | 2 | $0 |
| Tony Doan | Director | 2 | $0 |
| Greg Brown | Treasurer | 2 | $0 |
| Kiana Verdugo | Director | 2 | $0 |
| James Durr | Vice President | 2 | $0 |
| Victor L Alonzo | Treasurer | 2 | $0 |
| Jonathan Weller | Director | 2 | $0 |
| Marc Boesen | Director | 2 | $0 |
| Steven Miller | Director | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202030079349301728_public.xml