Organizations Filed Purposes:
SOFIA SEES HOPE IS A 501C(3) NONPROFIT PATIENT ADVOCACY ORGANIZATION DEDICATED TO TRANSFORMING THE LIVES OF THOSE AFFECTED BY BLINDNESS CAUSED BY RARE INHERITED RETINAL DISEASES. OUR MISSION IS TO GENERATE AWARENESS, RAISE FUNDS FOR RESEARCH, AND PROVIDE OUTREACH, SUPPORT AND EDUCATION TO THOSE AFFECTED BY LCA AND OTHER RARE RETINAL DISEASES.
GENERATE AWARENESS AND FUNDS TO FUND RESEARCH, DIAGNOSIS, AND OPPORTUNITIES TO HELP FAMILIES IMPACTED BY THE GENETIC DISORDER THAT CAUSES BLINDNESS, LEBER'S CONGENITAL AMAUROSIS (LCA).
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Alice Soscia | DIRECTOR | 2 | $0 |
| Thomas Robarge | DIRECTOR | 2 | $0 |
| Charles Priebe | DIRECTOR | 2 | $0 |
| Jeffrey Finman Phd | DIRECTOR | 2 | $0 |
| George Adrian Od | DIRECTOR | 2 | $0 |
| Laura Manfre | CHAIR | 20 | $0 |
| Daniel King Esq | SECRETARY | 5 | $0 |
| Shanda Easley | DIRECTOR | 2 | $0 |
| Patricia Coan | DIRECTOR | 2 | $0 |
| Stephanie F Brown | TREASURER | 5 | $0 |
| Elizabeth Borysewicz | VICE CHAIR | 5 | $0 |
| Billie Jo Abbiati | DIRECTOR | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202001589349300300_public.xml