Organizations Filed Purposes:
THE MISSION OF THE EPILEPSY FOUNDATION IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES.
THE EPILEPSY FOUNDATION OF CONNECTICUT: PROVIDED INFORMATION I.E. BROCHURES, MEDICATION INFORMATION, LEGAL RIGHTS, ADVOCACY, ETC. TO 660 CLIENTS. CONDUCTED 35 EDUCATIONAL PROGRAMS THAT SERVED 900 PARTICIPANTS INCLUDING SCHOOL NURSES, ALLIED HEALTHCARE PROFESSIONALS, TEACHERS, CAMP COUNSELORS, LIFEGUARDS, EARLY CHILDCARE EDUCATORS, OTHER AGENCY AND EMPLOYEE TRAINING, SENIOR CITIZENS, TRANSIT COMPANIES, ELEMENTARY SCHOOL STUDENTS, MIDDLE SCHOOL STUDENTS, HIGH SCHOOL STUDENTS, POLICE OFFICERS, AND FIRST RESPONDERS. HOSTED 7 EDUCATIONAL WEBINARS WITH PROFESSIONALS PROVIDING INFORMATION ABOUT VARIOUS EPILEPSY RELATED TOPICS. SUCCESSFULLY ADVOCATED FOR EMERGENCY LEGISLATION EXPANDING ACCESS TO AND REIMBURSEMENT OF TELEHEALTH SERVICES DURING THE COVID PANDEMIC. SPONSORED A VIRTUAL CAMPING PROGRAM FOR 15 CHILDREN AND TEENS WITH EPILEPSY. MANAGED A PARENT & FAMILY TELEPHONE SUPPORT NETWORK. MANAGED A FRIEND TO FRIEND TELEPHONE SUPPORT NETWORK. SPONSORED 5 SUPPORT GROUPS THROUGHOUT CONNECTICUT, SERVING 50 PEOPLE MONTHLY. PROVIDED TRANSPORTATION ASSISTANCE FOR CLIENTS WITH EPILEPSY. OFFERED THE HALYN MURTHA FAMILY ASSISTANCE FUND TO HELP PEOPLE WITH EPILEPSY IN NEED OF FINANCIAL ASSISTANCE TO COVER THE COST OF EPILEPSY TREATMENT, AND CARE SERVICES ASSOCIATED WITH THE CONDITION. ENROLLED 17 CLIENTS IN THE HOBSCOTCH MEMORY & COGNITION PROGRAM. ENROLLED 26 CLIENTS IN PROJECT UPLIFT PROGRAM THAT IMPROVED MENTAL HEALTH THROUGH MINDFULNESS AND COGNITIVE BEHAVIORAL SKILLS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Linda Wallace | EXECUTIVE DI | 40 | $93,500 |
| Greg Sparzo | VICE PRESIDE | 1 | $0 |
| Darren Sinofsky | SECRETARY | 1 | $0 |
| Gary R Siegel | DIRECTOR | 1 | $0 |
| Alex S Robertson | DIRECTOR | 1 | $0 |
| Ian Race | PRESIDENT | 1 | $0 |
| Michelle Mechanic | DIRECTOR | 1 | $0 |
| Letanya Lawrence | DIRECTOR | 1 | $0 |
| Davina King | DIRECTOR | 1 | $0 |
| Scott Demsey | DIRECTOR | 1 | $0 |
| Lisa Cretella | DIRECTOR | 1 | $0 |
| Yulia Chillington | DIRECTOR | 1 | $0 |
| Susan L Sheppard Cpa | TREASURER | 1 | $0 |
| Denise Brower | DIRECTOR | 1 | $0 |
| Dr Robert Bonwetsch | DIRECTOR | 1 | $0 |
| Steve Arena | HONORARY DIR | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202131239349301803_public.xml