Organizations Filed Purposes:
Support to individuals affected by spina bifida
Birth Defects, Genetic Disorders & Developmental D: Outreach - This program provides assistance to individuals and families directly affected by the birth defect spina bifida. This includes information and referal, educational opportunities and support meetings. (300 families)
Birth Defects, Genetic Disorders & Developmental D: Conference - co-sponsor a regional conference for the education and socialization for affected individuals
Birth Defects, Genetic Disorders & Developmental D: AWARENESS - OUTREACH TO NON-MEMBERS AFFECTED BY SPINA BIFIDA, EDUCATION AND SUPPORT TO MEMBERS, PUBLIC AWARENESS OF SPINA BIFIDA AND PREVENTION METHODS. (3000 Individuals)
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Kiley J Carlson | Exec Director/CEO | 10 | $12,546 |
| Jaclyn Lanzetti | Director | 2 | $0 |
| Sephanie Beck | Director | 5 | $0 |
| Francine Hebert | Director | 2 | $0 |
| Donna Savino | Director | 2 | $0 |
| Kara Maloney | Director | 2 | $0 |
| Rebecca Hajosy | Secretary/Treasurer | 5 | $0 |
| Carol Quinn Toomey | Chair | 5 | $0 |
| Dr Roger Thrall | Director | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201412279349302646_public.xml