Organizations Filed Purposes:
COALITION TO CURE CALPAIN 3 FUNDS AND SUPPORTS RESEARCH EFFORTS FOCUSED ON UNDERSTANDING THE BIOLOGY OF AND FINDING A CURE FOR LIMB GIRDLE MUSCULAR DYSTROPHY TYPE 2A (LGMD2A/R1), A FORM OF CALPAINOPATHY AND RAISES AWARENESS OF THE DISEASE AMONG BOTH THE SCIENTIFIC COMMUNITY AND THE GENERAL PUBLIC.
GRANTS ARE PROVIDED TO VARIOUS RESEARCHERS, RESEARCH INSTITUTIONS AND UNIVERSITIES THAT CONDUCT RESEARCH RELATED TO LGMD2A/R1, A FORM OF CALPAINOPATHY. SOME OF THE SPECIFIC PURPOSES OF THE FUNDS INCLUDE (1) USING CRISPR/CAS9 TO CREATE AND CHARACTERIZE KNOCK OUT AND NULL ALLELES ON MULITPLE GENETIC BACKGROUNDS, (2) DNA-MEDIATED GENE TERAPY, (3) TARGETING MSS51 AS A THERAPEUTIC OPTION, AND (4) CAPN3 MEDIATED PROCESSING OF C- TERMINAL TITIIN AND TURNOVER OF TITIN FRAGMENTS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Michele Wrubel | SENIOR V. PR | 25 | $0 |
| Lee Wrubel | TREASURER | 5 | $0 |
| Alberto Nobrega | DIRECTOR | 3 | $0 |
| Demosthenes Madureira De Pinho Neto | DIRECTOR | 1 | $0 |
| Jordan Boslego | PRESIDENT | 6 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202012319349301681_public.xml