Organizations Filed Purposes:
THE ASH RESEARCH COLLABORATIVE (ASH RC) WAS ESTABLISHED BY THE AMERICAN SOCIETY OF HEMATOLOGY IN 2017 TO FOSTER COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE.
SEE PART III, LINE 1.
THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS TO SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON THE NOVEL CORONAVIRUS (COVID-19) AND ITS IMPACT ON INDIVIDUALS LIVING WITH HEMATOLOGIC CONDITIONS (COVID-19 REGISTRY), MULTIPLE MYELOMA AND SICKLE CELL DISEASE. THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 3,000 PATIENTS WITH SCD AND 2,000 PATIENTS WITH MULTIPLE MYELOMA.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Uchenna Onyeachom | SR. MANAGER, DATA HUB INFORMATICS | 35 | $0 |
| Charles Chesson-Dir Sickle Cell | DISEASE CLINICAL TRIAL NETWORK | 35 | $0 |
| Robert Plovnick | CHIEF MEDICAL QUALITY OFFICER | 18 | $0 |
| Matthew Gertzog | EXECUTIVE DIRECTOR | 18 | $0 |
| Allison Loren | BOARD MEMBER (BEG. 01/20) | 2 | $0 |
| Bob Lowenberg | BOARD MEMBER (BEG. 01/20) | 2 | $0 |
| Belinda Avalos | BOARD MEMBER | 2 | $0 |
| Joseph Mikhael | BOARD MEMBER | 2 | $0 |
| Agnes Lee | BOARD MEMBER | 2 | $0 |
| John C Byrd See Sch O | BOARD MEMBER | 2 | $0 |
| Cynthia E Dunbar See Sch O | BOARD MEMBER | 2 | $0 |
| Arnold Ganser | BOARD MEMBER | 2 | $0 |
| Steven Allen | BOARD MEMBER (THROUGH 12/31/19) | 2 | $0 |
| Mark Crowther | TREASURER | 2 | $0 |
| Robert A Brodsky See Sch O | SECRETARY | 2 | $0 |
| Martin S Tallman See Sch O | VP TO PRES.-ELECT (EFF. 01/20) | 2 | $0 |
| Jane N Winter | BOARD MEMBER TO VP (EFF. 01/20) | 2 | $0 |
| Stephanie Lee See Sch O | PRES-ELECT TO PRES (EFF. 01/20) | 2 | $0 |
| Roy Silverstein See Sch O | PRESIDENT (THROUGH 12/19) | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202100989349300825_public.xml