Organizations Filed Purposes:
CHILDREN'S CANCER CAUSE WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS.
ADVOCACY EDUCATION: THE ORGANIZATION LEADS SEVERAL ACTIVITIES FOCUSED ON EDUCATING PATIENTS, SURVIVORS, AND THEIR FAMILIES ABOUT THE IMPACT OF FEDERAL AND STATE HEALTH POLICY ON CHILDHOOD CANCER AND SURVIVORSHIP CARE. EDUCATIONAL PROGRAMS INCLUDE A QUARTERLY WEBINAR, MONTHLY NEWSLETTERS, EMAIL ALERTS ON PENDING LEGISLATION AND A TOOLKIT PROVIDING STRATEGIES AND TACTICS ON EFFECTIVE ADVOCACY. THE ORGANIZATION PRODUCES CONFERENCES TO EDUCATE LEGISLATIVE AND REGULATORY DECISIONMAKERS ON THE CHILDHOOD CANCER EXPERIENCE AND POLICY NEEDS. IN ADDITION, THE ORGANIZATION HAS INITIATED A 'COLLEGE SCHOLARS' PROGRAM, PROVIDING A SCHOLARSHIP TO SURVIVORS OF CHILDHOOD CANCER.EACH MONTH THE ORGANIZATION ENGAGES IN A THOUGHTFUL, ANALYTICAL PROCESS REVIEWING TIMELY AND RELEVANT POLICY ISSUES IMPACTING CHILDREN WITH CANCER. THIS INFORMATION IS DISTRIBUTED THROUGH A VARIETY OF ELECTRONIC MEDIA TO PATIENTS, SURVIVORS AND FAMILIES AND INFORMS THE POLICY AGENDA FOR THE ORGANIZATION AND OTHER CHILDHOOD CANCER FOUNDATIONS.CHILDREN'S CANCER AWARENESS AND ADVOCACY DAY: THIS DAY BRINGS TOGETHER PEDIATRIC PATIENTS, YOUNG ADULT SURVIVORS, AND FAMILIES FOR A DAY OF MOBILIZING AGAINST CHILDHOOD CANCER. THE ORGANIZATION PARTNERS WITH OTHER ORGANIZATIONS TO OFFER A TRAINING WORKSHOP FOR THE LOBBY DAY WHICH FAMILIARIZES SURVIVORS WITH THE FEDERAL LEGISLATIVE AND APPROPRIATIONS PROCESS AND INSTRUCTS ATTENDEES ON EFFECTIVE MESSAGING STRATEGIES FOR VISITS WITH CONGRESSIONAL MEMBERS AND STAFF.PUBLIC POLICY ADVOCACY: THROUGH PRESENTATIONS TO GOVERNMENT AGENCIES, POLICY MAKERS, COALITIONS, AND STAKEHOLDERS, THIS PROGRAM PROVIDES INFORMATION ON THE IMPACT OF FEDERAL POLICY ON CHILDREN WITH CANCER AND SURVIVORS. THE PURPOSE IS TO FACILITATE THE DEVELOPMENT AND APPROVAL OF MORE EFFECTIVE AND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER AND ENSURES APPROPRIATE CARE FOR SURVIVORS THROUGH EDUCATION ON THE BARRIERS TO DRUG DEVELOPMENT AND THE CONSEQUENCES OF CURRENT TREATMENTS.THE ORGANIZATION ALSO UTILIZES WEBSITE EDUCATION AND MONTHLY NEWSLETTERS TO FACILITATE THEIR CAUSE.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| George Dahlman | CHIEF EXECUTIVE OFFICER | 40 | $232,828 |
| Daniel Weschler | DIRECTOR | 0.25 | $0 |
| Mary Mccabe | DIRECTOR | 0.25 | $0 |
| Lauren Neff | DIRECTOR | 0.25 | $0 |
| Larry Hausner | VICE CHAIR | 0.25 | $0 |
| Michael P Link Md | DIRECTOR | 0.5 | $0 |
| Leann Jackson | CHAIR | 0.25 | $0 |
| David G Poplack Md | DIRECTOR | 0.25 | $0 |
| Wylie D Chen | DIRECTOR | 0.25 | $0 |
| Susan L Weiner | FOUNDER | 3 | $0 |
| John Stewart | DIRECTOR | 0.25 | $0 |
| Steven Shak Md | DIRECTOR | 0.25 | $0 |
| Beth Silber | DIRECTOR | 0.25 | $0 |
| Jennifer Niedermeyer | DIRECTOR | 0.25 | $0 |
| Adam Rosen | TREASURER | 0.5 | $0 |
| Susan Scherr | BOARD SECRETARY | 0.5 | $0 |
| Lori Salley Ring | DIRECTOR | 0.25 | $0 |
| Lynn Bayard | DIRECTOR | 0.25 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202100579349300310_public.xml