Organizations Filed Purposes:
TO RAISE AWARENESS AS WELL AS SUPPORT, CARE AND FUNDING FOR AMYOTROPHIC LATERAL SCLEROSIS ("ALS") AND THE SEARCH FOR CURES FOR ALS.
SEE PART III, LINE 1.
DELIVER FOR PATIENTS - DELIVER A COMPREHENSIVE NAVIGATION PROGRAM SERVICING ALS PATIENTS AND THEIR FAMILIES TO EMPOWER PATIENTS AND THEIR FAMILIES WITH RELEVANT MEDICAL AND RESEARCH INFORMATION, SUPPORT THEM EMOTIONALLY, CONNECT THEM WITH PRACTICAL RESOURCES, AND HELP THEM BUILD A COMMUNITY AROUND THEM. I AM ALS NAVIGATION WILL CONNECT THOSE IT SERVES TO THE PROGRAMS AND SERVICES THAT BEST FIT THEIR NEEDS AND BE A PARTNER EVERY STEP OF THE WAY IN THEIR ALS JOURNEY.
MOBILIZE PATIENTS AND THEIR NETWORKS AND TRANSFORM PUBLIC UNDERSTANDING - PROVIDE A WAY FOR THOSE IMPACTED BY ALS TO SERVE AS A DRIVING FORCE IN MAKING PROGRESS IN THE ALS FIGHT. ENSURE THAT THOSE OUTSIDE OF THE ALS COMMUNITY KNOW WHAT ALS IS AND PROVIDE TOOLS FOR AN ARMY OF EMPOWERED ADVOCATES TO MAKE REAL PROGRESS ON POLICY AND LEGISLATIVE GOALS, INCREASE FUNDING FOR ALS RESEARCH, AND ENGAGE EVERYONE IN THIS FIGHT.
INCREASE RESEARCH FUNDING AND SPEEDING OF CURES - BUILD A COLLABORATIVE ALS RESEARCH PLATFORM TO ENABLE TRANSFORMATIVE RESEARCH AND EXECUTE ON LEGISLATIVE PRIORITIES TO DRAMATICALLY INCREASE RESEARCH FUNDING, IMPROVE PATIENT ACCESS TO POTENTIALLY LIFE-CHANGING THERAPIES, AND DELIVER NEEDED SERVICES AND CARE FOR PEOPLE LIVING WITH ALS AND THEIR CAREGIVERS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Danielle Carnival | CHIEF EXECUTIVE OFCR (FROM 9/2019) | 50 | $68,181 |
| Jano Cabrera | DIRECTOR | 4 | $0 |
| Michael Slaby | DIRECTOR (FROM 4/2019) | 10 | $0 |
| Daniel Tate | DIRECTOR | 8 | $0 |
| Edwin Cohen | DIRECTOR | 4 | $0 |
| Clare Durrett | DIRECTOR | 4 | $0 |
| Peter Bowen | DIRECTOR | 10 | $0 |
| Brian Wallach | CO-FOUNDER | 40 | $0 |
| Jessie Rossman | SECRETARY | 15 | $0 |
| Sandra Abrevaya | TREASURER | 15 | $0 |
| Louise Langheier | CHAIR | 15 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202001549349300615_public.xml