NATIONAL BREAST CANCER COALITION FUND
1010 VERMONT AVENUE NW NO 900, WASHINGTON, DC 20005 www.breastcancerdeadline2020.org

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Organizations Filed Purposes: THE MISSION OF THE ORGANIZATION IS TO END BREAST CANCER. TO RENEW THE SENSE OF URGENCY TO ITS MISSION AND TO REFOCUS GLOBAL EFFORTS ON ENDING BREAST CANCER AND SAVING LIVES, THE NATIONAL BREAST CANCER COALITION HAS SET A DEADLINE: KNOW HOW TO END BREAST CANCER BY JANUARY 1, 2020, BREAST CANCER DEADLINE 2020. NBCC HAS A STRATEGIC PLAN OF ACTION TO ACHIEVE THE DEADLINE. THE PLAN FOCUSES ON PRIMARY PREVENTION, STOPPING WOMEN FROM GETTING BREAST CANCER, AND UNDERSTANDING AND PREVENTING METASTASIS (THE SPREAD OF CANCER), WHICH IS RESPONSIBLE FOR 90% OF BREAST CANCER DEATHS. THE BLUEPRINT IS DESIGNED AROUND THREE GOALS: RESEARCH NEEDED TO END BREAST CANCER; GLOBAL ACCESS TO THE NECESSARY INFORMATION AND LIFESAVING INTERVENTIONS; AND THE INFLUENCE OF LEADERS EVERYWHERE IN THE STRATEGIES TO END BREAST CANCER.

EDUCATION AND TRAINING - THE CENTER FOR NBCC ADVOCACY TRAINING SUPPLIES THE EDUCATION, TOOLS, TRAINING, AND ACTION THAT ENABLE BREAST CANCER SURVIVORS AND OTHER ADVOCATES TO UNDERSTAND COMPLEX MEDICAL AND SCIENTIFIC INFORMATION AND TO TAKE LEADERSHIP ROLES IN CLINICAL, SCIENTIFIC, FUNDING, AND POLICY DECISION-MAKING THAT AFFECT BREAST CANCER.THE ADVOCATE LEADERSHIP SUMMIT IS A THREE-DAY EDUCATIONAL AND STRATEGY-BUILDING SESSION TO TRAIN AND EMPOWER BREAST CANCER SURVIVORS AND OTHER ADVOCATES BY PROVIDING INFORMATION AND BACKGROUND ABOUT BREAST CANCER AS WELL AS THE TOOLS AND TACTICS NECESSARY TO TAKE A LEADERSHIP ROLE IN BREAST CANCER ADVOCACY.PROJECT LEAD, NBCC'S INNOVATIVE SCIENCE TRAINING COURSE, IS DESIGNED TO HELP BREAST CANCER ACTIVISTS INFLUENCE RESEARCH AND PUBLIC POLICY. AN INTENSIVE TWO-TO-SIX-DAY PROGRAM, PROJECT LEAD PREPARES ADVOCATES FOR PARTICIPATION IN THE WIDE RANGE OF FORUMS WHERE BREAST CANCER RESEARCH DECISIONS ARE MADE. PROJECT LEAD INCLUDES:- PROJECT LEAD INSTITUTE: ANNUAL INTENSIVE SIX-DAY COURSE IN CORE SCIENCE TRAINING FOR ADVOCATE LEADERS TO LEARN THE LANGUAGE AND CONCEPTS OF SCIENCE WITH A FOCUS ON THE BIOLOGY OF BREAST CANCER, GENETICS, EPIDEMIOLOGY, RESEARCH DESIGN, AND ADVOCACY.- ADVANCED PROJECT LEAD: ONGOING EDUCATIONAL AND TRAINING SESSIONS FOR ADVOCATES WHO EXCEL IN SCIENCE AND HAVE SUCCESSFULLY COMPLETED PROJECT LEAD FOCUSING ON ENHANCING CRITICAL THINKING AND RESEARCH SKILLS.- CLINICAL TRIALS PROJECT LEAD: ADVANCED, INTENSIVE TRAINING FOR GRADUATES OF PROJECT LEAD IN THE KEY ASPECTS OF CLINICAL TRIAL DESIGN, IMPLEMENTATION, AND OVERSIGHT. - PROJECT LEAD WORKSHOP: TWO-AND-A-HALF-DAY, ENTRY-LEVEL COURSE IN BREAST CANCER SCIENCE THAT TEACHES HOW TO CRITICALLY ANALYZE RESEARCH AND EVALUATE BREAST INFORMATION IN THE MEDIA.- CONTINUING EDUCATION FOR PROJECT LEAD GRADUATES: CONTINUED SCIENTIFIC EDUCATION AND RESEARCH INVOLVEMENT, INCLUDING LEADGRADS ONLINE RESOURCES, ADVANCED TOPICS SESSIONS AT VARIOUS SCIENTIFIC MEETINGS, AND LEADCASTS - ONLINE WEBINARS WITH WELL-KNOWN RESEARCHERS.- ONLINE CENTER FOR ADVOCACY TRAINING: NBCC'S ESTEEMED TRAINING EXPERIENCES BROUGHT DIRECTLY TO ADVOCATES IN A CONVENIENT AND UNDERSTANDABLE DIGITAL FORMAT.- TEAM LEADER TRAINING: PREPARES GRASSROOTS LEADERS TO UNDERSTAND THE LEGISLATIVE PROCESS AND TO FORWARD NBCC'S ANNUAL PUBLIC POLICY AGENDA.

CATALYTIC RESEARCH PROJECTS AND COLLABORATIONS - NBCC'S ARTEMIS PROJECT IS CENTERED AROUND STRATEGIC SUMMITS, CATALYTIC WORKSHOPS, AND COLLABORATIVE EFFORTS WITH A MULTI- DISCIPLINARY AND DIVERSE GROUP OF STAKEHOLDERS. THIS ADVOCATE-LED, INNOVATIVE APPROACH ALLOWS SCIENTISTS, INDUSTRY REPRESENTATIVES, AND REGULATORS TO WORK COLLABORATIVELY WITH ADVOCATES TO DEVELOP AND IMPLEMENT STRATEGIC RESEARCH PLANS THAT COULD HAVE A SIGNIFICANT IMPACT ON PRIMARY PREVENTION AND SAVING LIVES. PROJECTS INCLUDE:- ARTEMIS PROJECT FOR A PREVENTIVE BREAST CANCER VACCINE: A STRATEGIC PLAN FOR THE DEVELOPMENT OF A PREVENTIVE IN BREAST CANCER.- ARTEMIS PROJECT ON THE PREVENTIVE OF METASTASIS: DETERMINING THE PROCESS BY WHICH BREAST CANCER SPREADS AND BECOMES LETHAL, AND HOW TO INTERVENE TO STOP IT. - SEED GRANTS FOR RESEARCH: NBCC HAS AWARDED SEED GRANTS TO ALLOW SCIENTISTS TO BEGIN THE RESEARCH REQUIRED IN KEY AREAS IDENTIFIED IN THE COLLABORATIVE RESEARCH PLANS.CLINICAL TRIALS INITIATIVE - NBCC WORKS WITH INDUSTRY AND THE RESEARCH COMMUNITY ON CLINICAL TRIALS THAT MEET THE CRITERIA OF NBCC'S CLINICAL TRIAL PROJECT. WE INVOLVE BREAST CANCER ACTIVISTS IN ALL ASPECTS OF CLINICAL TRIAL DESIGN, IMPLEMENTATION, AND OVERSIGHT. WE WORK TO IMPROVE ACCESS TO QUALITY CLINICAL TRIALS AND, THUS, TREATMENT AND CARE FOR WOMEN WITH BREAST CANCER AND STRATEGIES FOR THOSE AT RISK.

PUBLIC POLICY - PUBLIC POLICY PLAYS A SIGNIFICANT ROLE IN ALL ASPECTS OF BREAST CANCER. NBCC FOCUSES ITS PUBLIC POLICY ADVOCACY ON PRIORITIES THAT WILL HAVE A MAJOR IMPACT ON ENDING BREAST CANCER, INCLUDING THOSE THAT WILL INCREASE FUNDING FOR MEANINGFUL BREAST CANCER RESEARCH, PROVIDE ACCESS TO HIGH-QUALITY HEALTH CARE AND CLINICAL TRIALS, AND EXPAND THE INFLUENCE OF BREAST CANCER ADVOCATES EVERYWHERE BREAST CANCER DECISIONS ARE MADE.NBCC HOSTS A SERIES OF CONGRESSIONAL FORUMS ON CAPITOL HILL DESIGNED TO EDUCATE POLICYMAKERS ON ISSUES VITAL TO THE BREAST CANCER COMMUNITY. NBCC PROVIDES MEMBERS OF CONGRESS AND THEIR STAFF UP-TO-DATE INFORMATION ABOUT BREAST CANCER AND REPORTS ON RESEARCH DISCOVERIES THAT AFFECT POLICY AND APPROPRIATIONS. NBCC LEADERSHIP OFTEN TESTIFIES BEFORE CONGRESSIONAL COMMITTEES ON SUBSTANTIVE BREAST CANCER ISSUES.

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