Organizations Filed Purposes:
PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH CHRONIC AND LIFE-THREATENING ILLNESSES AND ADVOCATE FOR ACCESS TO TREATMENTS, INNOVATIONS, AND CARE PATIENTS NEED.
VOICES OF VALUE IS A MULTI-MEDIA HUB BY PATIENTS FOR PATIENTS TO SHARE KNOWLEDGE AND ADVOCATE FOR THE NEEDS OF THEIR COMMUNITY. PATIENTS SHARE INSIGHTS AND PRESENT THE TRUE CHALLENGES OF LIVING WITH CHRONIC AND LIFE-THREATENING ILLNESSES.
INSTITUTE FOR PATIENT ACCESS AND AFFORDABILITY (IPAA): WE EVALUATE THE VARIOUS FRAMEWORKS THAT ASSESS AND DEMONSTRATE THE VALUE OF INNOVATIVE TREATMENTS. THESE TREATMENTS HELP PATIENTS WHO ARE LIVING WITH RARE AND CHRONIC DISEASES. AS THE MARKET BECOMES MORE INNOVATIVE, WE FOCUS ON WAYS TO PROMOTE ACCESS AND MAINTAIN AFFORDABILITY. WE LOOK BEYOND THE ONE-SIZE-FITS-ALL APPROACH, WHICH CAN DISCRIMINATE AGAINST PATIENTS. WE PROVIDE PATIENT-POWERED PATHWAYS TO HELP BOTH THE PAYERS AND GOVERNMENT AGENCIES AS THEY MAKE CRITICAL PAYMENT DECISIONS FOR THESE PAYMENTS.
PATIENTS RISING UNIVERSITY (PRU) IS A FREE ONLINE EDUCATIONAL PROGRAM DEVELOPED TO HELP PATIENTS AND CAREGIVERS BUILD SELF-ADVOCACY SKILLS, LEARN ABOUT THEIR CONDITIONS, NAVIGATE HEALTHCARE COVERAGE, AND ULTIMATELY GET ACCESS TO THE BEST CARE AND TREATMENT POSSIBLE.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Teressa Wilcox | EXECUTIVE DIRECTOR | 30 | $97,192 |
| Karen Shehade | DIRECTOR | 5 | $0 |
| Jeffrey Oldham | DIRECTOR | 5 | $0 |
| Larry Frazer | TREASURER | 5 | $0 |
| John Kabateck | CHAIRMAN | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202021969349300012_public.xml