Organizations Filed Purposes:
To create one united patient voice. Empowering patients with correct information to break down the barriers to access vital treatments needed. Providing a voice to change insurance and regulatory barriers.
Patient Value Watch: An interactive website designed to educate patients on one of the major barriers to access they experience with little knowledge it is happening: Value Frameworks. Patients Rising Now educates patients on the types of value frameworks being developed and engages them with polls, surveys and measurable data in an effort to use their voices and their data to affect change toward better access and more patient-centered care.Patient Advocate Training: Training patient advocates who want to be involved in advocacy beyond simply signing a letter or calling their congressperson. We teach patients how to use their story to affect change for the masses. Patients Rising Now hosts local training days for regional patient advocates, as well as tele-townhalls. They also train advocates to elevate their voice in the media Patient Declaration: A special major campaign in 2016 that gathered more than 50000 patient signatures and created a patient advocate community where they can engage with each other, develop meet-ups and use their voices to help break down the barriers to access in health care
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Teressa Wilcox | Executive Director | 15 | $12,642 |
| Roy Merrill | Treasurer | 0.7 | $0 |
| John Kabateck | Chairman of the Board | 0.25 | $0 |
| Stephen Schneider | Director | 1 | $0 |
| Colleen Weaver | Director | 1 | $0 |
| Jonathan Wilcox | Policy Director | 20 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201813179349303541_public.xml